It's been just about 2.5 years since I last went to Pittsburgh for a Post Transplant follow up Clinic. I am amazed and humbled that my health and my beautiful lungs have treated me so well for so long. I figured 2.5 years is long enough. . .not to mention I miss seeing my doctor and coordinators.
Pittsburgh is one of our biggest medical expenses. It's going to cost us over $1K possibly more. We are flying 'stand by' since that is the cheapest way for us to fly. It can be stressful for me because I don't handle the stress of not knowing whether we'll get a seat on the flight or not and if we don't I don't handle being stuck in an airport waiting for the next chance to "maybe" get a seat on the next flight. But I am hoping we'll get right on and be one our way to Pittsburgh. I'll have my bloodwork, PFT's and a CT scan on Thursday November 8th and on Friday I guess they'll decide whether to do a Bronch or not. I am just about a month and a half away from being 5 years post transplant!! I'm so excited to be so healthy and be able to celebrate such a HUGE milestone.
Many hospitals refused to even evaluate me or consider me a candidate for a lung transplant because they felt like I was too" high risk" and the University Of Utah hospital told me I wouldn't live much more than possibly months post transplant and that I should just get my affairs in order and prepare to die. Man I am sooooo glad I didn't listen to that guy! Here I am living life and enjoying every breath almost 5 years later. I have done some incredible things, met some incredible people and I still have a lot of plans in my life to continue living my dreams.
Anyways. . . I would like to sell some decals and bracelets to help cover some of the cost. I have saved some money in paypal that has been donated to me over the last year. . . . but believe me it's no where close to the thousand dollars it's going to cost me. Any donation will help. We have the money for our tickets and we are going to be reserving our hotel room soon. We'll have to have a rental car as well while we are there & money for food. So if you want a decal or a bracelet or perhaps even a some scrapbooking done I'll do it! Just donate through my paypal bottom at the bottom of my blog or click HERE and message me at jamiebug77@gmail.com and let me know what I can make for you. I might do some airbrushing and auction it off. . . if I get time. I'm so busy helping my family with the spook alley that I barely find time for myself. lol.
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3 years ago
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