I've been doing okay, I'm still in the appeal process with SSDI (it's been over 6 months now) they didn't continue my benefits despite me requesting it and getting my paperwork in...they conveniently misplaced it. My stress/anxiety has been through the roof despite my meds I take to control it. I've been going to a spine/ pain specialist for my back and joint pain.....it's so hard dealing with doctors who really know nothing or very little about CF and transplant. It's difficult some days to not lose hope. The days that I barely have the motivation or energy to get out of bed waking up with pounding headaches and back pain and when I do get up I still feel tired and lethargic.
I like to be pretty real and not sugar coat life post transplant here on my blog. But like most CFers not many people in my life would know or even suspect I feel terrible quite often. We are made "CF strong" so we keep up and live with the trials we've been dealt in life.
I'm praying I win my SSDI appeal, I feel like my quality of life would improve because just the added stress is effecting my health a lot.
Everything will work out, that I know....but it's just difficult sometimes to hold on and stay optimistic with all thn unknowns post transplant.
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