I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Tuesday, January 3, 2017

New Year=New Memories

Every new year I reminded at how blessed I am. My life isn't always peaches and cream....but transplant life has its trade offs. So every new year I focus on the good. * however I will address it for a minute*

2017 I'm looking foward to having the energy & stamina to ride my "Make-A-Wish" horse Pixydust. She was born the spring of 2007 she is my Dream Horse and she is exactly how I dreamed she would be. And today so many more of my dreams have come true. 

Another blessing which is my most treasured. My amazing husband. He married me knowing I would likely die in a few years from cystic fibrosis. He was next to me & cater for me from day one. He Never patronized me. Bryan is sincere, genuine, compassionate, strong snd faithful....but also VERY HANDSOME!! Im so blessed to be celebrated 12 years of beautiful, happy, and fulfilling marriage. ๐Ÿ’


My sister & her kids are my favorite people to hang out with. I treasure my sister times!! Nikkii is such a creative and beautiful soul. She loves everyone and is so thoughtful. I'm grateful I have been given so many more years to build fond & funny memories. She is my friend and one person I feel completely comfortable around. 
Sister Fun!!
MJ getting her nails done. 
Bodi wearing the bracelet we got him from Disneyland.


My parents have been on our side through all the good & the bad. We've had to lean on them many times. They are such a great example to us and taught me to respect myself, respect others and to find a man who believes the same. My parents taught me how to love unconditionally through their example. 
My Dad & Bryan (Best friends)
My mother on her horses 


These are the important things in life..money, jobs, even health is never more important than the ones who love you & carry you when you no longer can walk. All I can hope for in 2017 is to continue to be with my family and add another lifetime of memories. ๐Ÿ’•

Saturday, December 10, 2016

NINE YEARS!!!!

I'm celebrating my 9th Transplantiversary tomorrow (Dec.10th). How amazing it is to have such a beautiful gift that has added many more years with my loved ones. This anniversary is especially special for me. Just a month after I had my transplant in 2007 my husband and I celebrated our 9th marriage anniversary. This year marks another 9 years together. My beautiful angel donor's gift has now doubled our time together. 
I am feeling pretty good, it's unbelievable how sick I was. It really feels like a lifetime ago. I was praying for a couple more years with my amazing husband...and 9 years later I'm still so blessed. My life has been wonderful before and after my transplant. If I see everything as a blessing and look for the good in all situations I know my life will have no regrets. It's through the hard times I'm strengthened and the bad times help me recognize and appreciate the good.
 The things in life that are most precious to me are my family & friends. My husband is why I fight so hard. Love is so powerful ๐Ÿ’• I strive every day to be an example and inspire others with CF. Let's all pray for another 9+ years. 

Sunday, October 2, 2016

First "real" Vacation Post Transplant!!

Thanks to my amazing Mother-in-law (and my awesome hubby) I went on my first ever cruise! It was a short 4 day cruise to Ensenada, Mexico. I wasn't sure if I would enjoy cruising and I must say I am surprised at how much I LOVED it. We could have never afforded the trip without the help of my Mother in law and Bryan's grandmother. I'm so grateful. What a great opportunity to escape my health stress even if it was just for a short week. 
I drank lots of mixed drinks(virgin)...especially the Mango Margaritas๐Ÿน๐ŸนI filled up on cocktail shrimp every night and loved relaxing by the pool. I did get a funky reaction to the sunlight despite wearing sunscreen ๐Ÿ˜ฉ (due to post transplants meds I'm sure)


I'm hoping to do a longer cruise next year to celebrate my 10 year anniversary of my double lung transplant. I'm thinking a Caribbean cruise?!  ๐ŸŒด๐ŸŒด๐Ÿ‘™๐Ÿน
 
Now it's back to reality for me...fighting SSDI & work on getting health insurance. I'm grateful for the beautiful life that my angel donor has given me. The good and the bad. To be healthy enough to travel and make memories with Bryan for all these years is such an incredible gift. ๐Ÿ’• thank you so much Angel Donor!!


Tuesday, July 26, 2016

To love and be loved...

What's you're most treasured belonging? Mine is something that doesn't belong to me but given to me...love more than I ever hoped for, support of my hobbies & talents, admiration every day. My most treasured thing is my husband. Love is such a powerful & healing thing. Without his love I would have never known how strong I could be. 

It has been said that marriage is hard, yet I have not come across anything in the last 17+ years that even came close to making me question my choice to marry. Being loved so much by such an incredible man is my greatest blessing. Love is so powerful. To give love to someone else can be scary. When I was 19 I met my husband. I was afraid to love and be loved because I knew CF wasn't going to allow me to give my husband the things he deserved. I knew I probably wouldn't be able to have his children and worst I knew I probably won't get to grow old with him. That's a lot to expect another person to want to take on. 

I'm so very blessed to have found true love! I'm blessed to have the opportunity to give my love unconditionally. It's not easy sometimes let ourselves be vunerable, I mean we've had to be tough for our families as we battle a terminal illness after all. 

The overwhelming sadness at the thought of leaving my true  love behind when my journey on this earth is done us unbearable at times...but when we allow ourselves to love & be loved so deeply nothing can come in between that, not even death. 

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen