I have heard thy prayer, I have seen thy tears, behold I will heal thee. 2Kings 20:5

Monday, February 27, 2012

Moved into a house!

This last week has been a lot of work which I am hoping pays off :) We moved out of our 3rd floor apartment into a nice house with a fenced yard for Bella. It will be nice to grill on the patio as well as having a garage to airbrush in . . . oh and occasionally park the car and motorcycle. haha. I climbed up and down 3 flights of stairs about 100 + times in the last week. My legs were so sore, but the exercise was good for them.  Our new place has a LARGE jetted jacuzzi tub in the master bath which I'm telling you is INCREDIBLE!

My next hurdle is getting to Pittsburgh, PA for a post transplant clinic. Everything is stable and I feel great, however, I haven't been to Pittsburgh since May 2010. . .that's almost 2 YEARS! They want me to come and visit them and I'm thinking they might do a bronch, but if there is no suspicion of rejection then they might not. I admit I miss seeing everyone there. I'm looking forward to seeing Paul, and Dr. Pilewski :) I'm also looking forward to eating at a the restaurants I LOVE there too. It's just so darn difficult to get there and for the money I could vacation somewhere a lot more fun. haha!

I still cannot believe how great I have done post transplant! 4+ years no rejection and my daily routine is so minimal. I would have never believed anyone if they had told me life would be this awesome post transplant. I didn't have "hurdles" in my recovery, I had "mountains" I had to climb. . . but I have been on  top ever since. Life is awesome, It's tough sometimes but that is what makes me grow and appreciate everything I have.

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Friday, February 17, 2012

Fundraising for Transplant Games

I have set up an account on the Transplant Games Website so if anyone wants to make a donation you can make it there or through my Paypal. If you donate through my paypal I'll send you a bracelet or vinyl decal (my vinyl cutter is still on the fritz but it works) if you donate on my transplant games site your donation will be tax deductible. I need to raise $1200 as my part for the team, however I think I'll have other expenses on top of that (Travel & Food) I'm going to try to get some local businesses to sponsor me, but every donation helps :) If you want to help with my travel expenses you can donate through my paypal also frequent flyer miles might be something you could give me to help me with my plane ticket? Just a few ideas. I'm hoping to set up a couple fundraisers too. . .but those will be here in Oklahoma. I'm thinking a Motorcycle Rally/Ride. . . .Hmmmm. :) Or a Car Show??? If anyone has some good ideas let me know. I'm open for some great ideas. Thanks Blog Friends!!

Here is my Transplant Games Donation Site Link:  CLICK HERE


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  Be An Organ Donor!

Sunday, February 12, 2012

Liebster Award

It's been a while since I have been on my blog lately and I was surprised to discover that I have been given the Liebster Award by 2 different readers! Thanks guys :) Let Me Fly   and One breath at a Time


Liebster is a German word that literally translates to "favorite", "dearest" or "beloved". By one blogger giving it to another, they are essentially saying, your blog is a favorite of mine. I think it's great that I have been awarded this. I blog mostly to get things off my mind, it's like a journal to me. I find myself surprised people want to read it or find it interesting, but there is a few that do I guess.

The rules of the Liebster Blog Award are:
1) Acknowledge the blogger who gave the award by linking back to them
2) Give this award to 5 other bloggers (who have fewer than 200 readers), and let them know through a comment on their blog
3) Post the award on your blog
4) Best of all - bask in the glory, have fun and share the love!

I really hope that my blog helps others who are searching for hope, support, Faith and most importantly inspiration to keep on fighting and living life despite the trials we all face.

So the blogs that I have chosen to give the Liebster Award to are:

SUPERNINA- I have blogged about how awesome I think Nina is. She is an amazing Cyster/post transplant who is a dear friend of mine who helps keep me motivated. She has ran several races and done road bike races as well. She is a fantastic photographer and I recommend her blog with a 5 star rating :)

CF Fatboy- He is a Fibro who is a web designer. Him and his wife are preparing to soon be licensed Foster Parents. He is very inspiring.


My Journey with Cystic Fibrosis- Amy is a Cyster who is very honest and shares what life is like for her living with CF. She also Crochets and has an etsy store!! She is an inspiration to anyone that reads her blog. She is faced with many trials in her life and she is very honest about her life. She is in the process of planning her BIG Wedding in 8 months!

Nancy's Lung Transplant- I met Nancy in Pittsburgh about 6 months after my transplant. She is a Cyster who also had Cepacia pre-transplant. She is an amazing person who has published several books and inspires many. She has raised awareness of Organ Donation through public speaking. She has an awesome supportive husband and a beautiful daughter who is very involved in Irish Dance Competition.

This One Breath- David is a Man we met when I spoke at a CF education podcast sharing my transplant story. His wife Tiffany was just starting her journey towards getting a transplant. However, she was called home to be with God before she got new lungs. He continues her blog and he shares his faith and insight and honors the beauty of his wife. It's a great blog! His perspective is so inspiring.


Life of Riley's- I know I was just supposed to pick 5. . .but I couldn't just pick 5, So I am also HONORING my sister's blog. I LOVE, LOVE, LOVE every one of her posts. She is one of my biggest fans and my very best friend. Her kids are the sweetest things and I LOVE them sooooooo much. Her blog helps me stay connected and updated since I live so far away from them. HER BLOG is definitely one of my FAVORITE blogs by far :)




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  Be An Organ Donor!

Tuesday, January 31, 2012

Bug Hug. . .launch!

February is my month! I'm going to really get things rolling with my "Bug Hug" project. . .I'm hoping to have one "Bug Hug" ready to take to Pittsburgh with me when I go this spring (April-ish). I will try to make a blanket unless someone wants to make one and send it as a donation. Also I would love ANY resaurant gift cards (any amnount) if you can afford to donate one. These are for the patients and their families to help them with the costs of meals while they are recovering from the transplant. I think it will be easy to make my first one for a "female" that way I can know to get a s/m robe and cute socks, lotions. . etc.  I would like to include some kind of fancy electronic ie: ipad, ipod touch, tablet, or a cheap laptop.
 I will sit down and make an official list of things I would like to have in my duffel bags and if you see something you would like to donate please let me know and I'll give you the address to send it to. Also Visa Cash cards would be great to include & can help us buy things we didn't get donated. I'm hoping to get in contact with someone who may know how to get this foundation set up as a 501c so your donations can hopefully be tax deductable.

These are also options that will be available: Sponsers for a "bug hug" a filled duffle bag will be given in the sponser's name and mentioned as a sponser on my website Jamiebug.com when I get that dedicated to mainly this project :) I have a vision of this and I think it could be really great!! Hopefully we are able to get at least one "Bug Hug" to most of the large transplant centers by the end of the year.

Also Tribute's will be available: You may sponser a "bug hug" in memory of  a loved one or to HONOR a Recipient/Donor name to honor them. We will include your tributes story (if provided) and the gift duffle will be given in their name.

Like I said I will start to put together the VERY FIRST one starting in February.  I will get a duffel bag and start there. Email me if you are interested in donating something to be put in it :)

~Jamiebug!

These are just a few ideas I have brewing in my head. I would love to get a couple done and given away and hopefully raise interest and support for more!

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  Save a Life...Be Someone's Hero...  
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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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Want to help ME?

Donate by buying a handmade bracelet or vinyl window decal. The Money helps me with my continued Medical co-pays on prescriptions as well as with life long travel expenses back and forth to Pittsburgh, PA.

Click HERE
to go to my donation page. You'll see a few of the things I can make and a link to donate securely through my paypal account. Every donation helps me live longer and healthier.
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Thanks,
Jamiebug :)



My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen