Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@hotmail.com

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Friday, November 20, 2009

NEW MOON

It's really great to be alive right now for several obvious reasons. When I was released from the hospital one of the things I found that made a big impact on my life post transplant were a series of books from an LDS writer. My aunt from California told me I really needed to read them just before I became sick and dying. I would have never had the opportunity to have ever read them had it not been for Divine intervention :) I didn't know anything about the books when I began reading them. But seriously, they really gave me something to be excited about and looked forward to the other book releases. I read the three that were already released and had to wait for the 4th book of the Twilight series. It was a goal I knew I wanted to live to experience. After reading the books series I began to convince everyone I knew that they needed to read the books. You can imagine my excitement when in 2008 I heard they were making a movie. . .to be released November 2008. I had a new goal to live towards. November 20th was a must live to day. I waited in a mob of teeny boppers and hormone driven teen girls and boys for over 3 hours to watch my movie. I was a little disappointed and irritated at the result. . . . When I heard a movie of the second book got the green light, they got a bigger budget and a new director that I was familiar with my hopes began to build.

November 20th, 2009 was a must live to date. . . today is here, I am here, I went to the 9:30am matinee. I really, really liked this movie more than the first. I won't complain about what I didn't like, but I did really like the Wolves, Jacob, and how accurate & well done the director interpreted the book. It was very close and entertaining. All I would say is "Less Edward and Bella and MORE Jacob PLEASE!!"

I have even read Stephenie Meyer's book "The Host" and I am happy they are also making a movie of it. How I would love to be in it :)

So as you can see I am a big fan of Stephenie. Her books are a big part of my life after transplant. They gave me something to look forward to and be excited about~ it was what I really needed.

*Hopefully one of these days I can give her a signed copy of my book and get my Twilight series books signed by her :)

Save a life * Be Someone's Hero * Be an Organ Donor

Wednesday, November 18, 2009

I am not Barbie. . .

We all have weaknesses right? I know I do. But how often are we too tough on ourselves? I know I am. I read a post from a friends blog, and it made me stop and think of the things I am too critical about myself. . . .I loved playing with my Barbie when I was a young girl. I actually got it in my head that when I would turn 16 I was going to look like Barbie. . . . as you can imagine, I was sorely disappointed. I was anything BUT. I looked more like Skipper if even that good. Why do we put expectations upon ourselves that are out of our control? I STILL don't look like Barbie and I don't have the money to ever look like her :) But I am not Barbie, I am Jamie, and when they make a "Jamie doll" It will be well. . . . a lot smaller. It will have more scars than Barbie (unless it's Barbie post dog chewing) It will have an imperfect smile, and lots of freckles. It will have A LOT more realistic bust size and waist size and it's hair will come in a variety of colors. What I am saying is I had to accept that I don't have to look like anyone but me. I still haven't mastered it by any means. I get caught up in NEEDING to feel pretty, beautiful, desirable . . . what woman ever stops wanting to feel that way?

I try hard to change/improve on the things that I have control over. I work out to firm my muscle tone, and stay healthy. I can't change where I carry my extra weight, I can however do the work to improve what I can. Some things I can't change without a surgery of some type and frankly I have had enough surgeries for ten lifetimes. Does that mean I just don't care about the things I can't change? No. I still have my "UGLY" days and my "I'm not good enough" days. But I have more "I am amazing" days. Someday hopefully everyday will be an "I am amazing" day, however I am human and we may never feel perfect, because we are not.
Would a flower garden be nearly as beautiful if all the flowers were exactly the same size, kind, color, shape? It would be boring after just a few seconds. Our individuality is what makes us create a beautiful flower garden. So I tell my evil conscience to SHUT UP and enjoy the view.

Save a life * Be Someone's Hero * Be an Organ Donor

Love of my Life!

Love of my Life!
Bryan and I had our 10th Anniversary 1-08-09

People I would like to meet ~ click on their names to learn more about them!

1.5" X 2" 100% HANDMADE CHARM $32.00 *HAND MADE NECKLACE ADDITIONAL PERSONALIZE BACK OF CHARM!

About Me

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Jamie
Idaho, United States
I have Cystic Fibrosis....December of 2007 I was going to die. There is no cure, I didn't have much hope. I was given a miracle. With my husband by my side for over 11 years we endured the biggest trial of our lives. The Lord never promised it would be easy. . . but it IS worth it.
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MY BOOK.....

I have heard from so many people that I need to consider writing a book~ I don't claim to be any kind of a Writer..but I do have a secret I have been keeping..

I Finished my book
28 Breaths a Minute
*I will be submitting it to a publisher this summer and hopefully it is printed and available by next year!

Here's a Teaser.....

28 Breaths a Minute

Do you feel like you've lived a good life?” the Cystic Fibrosis staff asked me, preparing to tell me I was going to die. I couldn't believe the words she had said to me. Of course I felt like my life has been good....more than good. I definitely felt like it was far from over! However the truth is I was dying and there was nothing the doctors could do for me -It was overwhelming. The constant pain and discomfort was getting difficult to live with, but as I sat in the cold, sterile, examination room I knew I was not ready to stop fighting for my life.

*Read my Post on March 4th...

*Please take the time to listen to the song my mom wrote and my Dad sings: "Jesus Know My Name"


My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen

wish come true

wish come true
This is Pixydust, my palamino baby that I have always wanted since I was a small child.- I know God loves me because he gives me things that make me happy .