I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Tuesday, June 30, 2009


It's so amazing to me how much we are able to overcome...we can be stronger than we think when we rely on the Lord. I have just been contemplating that a lot lately. I had a family reunion this weekend and saw many people for the first time since my transplant. I had many opportunities to reminisce about my transplant and reflect back on my struggles and trials in life and my transplant. It was weird to hear others tell me how sick I was 2 years ago and how they knew I didn't have much more life left in my tiny, frail, body. It's like another lifetime to me.....how easy it is to forget how tough every day was. There is no way I did it alone. It's kinda funny though~ I thought I did a pretty good job hiding how sick I was....I guess I only fooled myself :)

Before my transplant I had to worry I wouldn't wake up every time I fell asleep or hard it was going to be to tell Bryan "goodbye". . . now I find myself worrying (obsessing) over my lung functions and rejection. But I also get to worry about what I am going to do with my life and being a "movie star" someday.

I am diligent about checking my lung functions several times a week and I track my meds and Prograf levels closely. Prograf is the medication that supresses my immune system so my body does not reject the transplanted organ. I just had some blood work done and my prograf levels were REALLY low. . which can allow my immune system to put my body in "Red Alert" and try to self destruct. :) However, I don't show any signs of rejection and my medication has been increased to raise my level. It's a reminder to me that I still have a very serious medical condition. I still have a life threatening disease and must manage it day by day. . . but it is also a reminder of the miracle I was given. I can breath and be healthy as long as I take a couple of pills every day diligently. I think that the things we have to work the hardest for are the the things we appreciate the most. I never ask for an easier life. . . I just ask for life.

If I could have one more wish in my lifetime it would be to know more about the person who gave me a 2nd chance in life. I may not get that during my life now~ but I know one day we will meet and rejoice in heaven.

Save a life..."Be Someone's Hero"....Be an Organ Donor

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen