I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5
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Friday, June 12, 2009

Wish I was Home....

I am still in Pittsburgh at the Magee Woman's Hospital room #3172 and I am wishing I was home.....I am so sick of sitting in a room with nothing to do all day when there are so many activities waiting for me.. I miss my Bella and hope to be able to see her soon. Although I must say it's been really nice having Bryan here to keep me company and keep me from being in a constant state of anxiety~

My sister is having a yard sale today to help raise money to help us while we are here and help us get home. I am thankful for her sacrifice and I hope she gets the support she needs.

My levels are still off...this morning they raised my prograf again and it is the highest dose I have ever taken...this worries me a little~ Prograf is my anti-rejection medication and if it's too low I can reject but if it's too high other things can happen like my head hurts tremendously, tremors, and I could have kidney and liver damage. So I have my concerns...
I was also given more Magnesium through an IV drip today. Nothing seems to be working correctly and I am hoping that it is just because of the "overload" my body is being put through. Perhaps everything will go back to normal....well what's normal for me anyway....when I am released. Hopefully that may be this weekend or first of next weekend. I could really use the sleep when I get home....ironically I get terrible sleep in the hospital due to many early morning interruptions...

I don't want to sound "down" but I am definitely sick of being in the "clink" and wish I knew when I might be able to see the light of day again :) I should get parole for good behavior. :)

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1 comment:

Cammi said...

Hi Jamie,

Sorry to hear you are still having problems with your levels. Bummer! I was hoping you were only in the hospital so you could finish your IVs and then you'd be on your way home! I hope it all resolves soon so you can be done with this little bump on the road and back to your life in AZ. Let us know if we can help you!

Cammi

June 13, 2009 at 1:31 PM

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen