I have heard thy prayer, I have seen thy tears, behold I will heal thee.
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Sunday, April 11, 2010

Organ Donor Awareness Month!

What a perfect month to share the message of Organ Donation than April. It is as some of you may remember my birth month :) In fact, in just 2 days I will be turning 31derful! So to help people realize the importance of becoming an Organ Donor. . . I dedicate this post to my Donor.


Organ Donors are Heroes in the lives of people they will never meet. Organ Donors are selfless and give a gift that is more precious than they may ever know. It is never easy to think of the sacrifice that had to made so that I would live. As much as I hoped for new lungs, I knew the cost at which they would come. That is why my Donor and her family not only own my lungs, but also much of my heart. I become overwhelmed with love and compassion for my Donor Family when I think about what they have given me. Some of this may be repetition, but I am going to include it. My Donor gave me the life I always prayed for. I prayed to know how it felt to breathe "normal", to ride my horse again with full strength and stamina, to be able to get back on stage and entertain people, to continue to share my life with my husband, and to strengthen others.
I do not know the circumstances surrounding my Organ Donor. I am sad when I think of her families loss. It is never taken lightly. The gratitude myself and my family have for them is unmeasurable. It is a personal decision that should be discussed with your loved ones if you choose to be an organ donor. If you are considering it, or have hesitations, please feel free to ask me anything or email me. I just want everyone to know that becoming an Organ Donor is one of the most important things you can do with your life. It can be hard to think about what's going to happen to your body after you die, let alone donating your organs and tissue. But being an organ donor is a generous and worthwhile decision that can be a lifesaver. Despite unforeseen tragedy, wonderful and powerful miracles happen because of Organ Donors. As an Organ Donor you will become 'someones hero'.

Here is info and facts on Organ Donation. Please get the facts if you are not an Organ Donor because there are some myths out there. Here is a list of some of the common myths.

Myth: If I agree to donate my organs, the hospital staff won't work as hard to save my life.
Fact: When you go to the hospital for treatment, doctors focus on saving your life — not somebody else's. You'll be seen by a doctor whose specialty most closely matches your particular emergency. The doctor in charge of your care has nothing to do with transplantation.

Myth: Maybe I won't really be dead when they sign my death certificate.
Fact: Although it's a popular topic in the tabloids, in reality, people don't start to wiggle their toes after they're declared dead. In fact, people who have agreed to organ donation are given more tests (at no charge to their families) to determine that they're truly dead than are those who haven't agreed to organ donation.

Myth: Organ donation is against my religion.
Fact: Organ donation is consistent with the beliefs of most religions. This includes Catholicism, Protestantism, Islam and most branches of Judaism. If you're unsure of or uncomfortable with your faith's position on donation, ask a member of your clergy. Another option is to check the federal Web site OrganDonor.gov, which provides religious views on organ donation and transplantation by denomination.

Myth: I'm under age 18. I'm too young to make this decision.
Fact: That's true, in a legal sense. But your parents can authorize this decision. You can express to your parents your wish to donate, and your parents can give their consent knowing that it's what you wanted. Children, too, are in need of organ transplants, and they usually need organs smaller than those an adult can provide.

Myth: An open-casket funeral isn't an option for people who have donated organs or tissues.
Fact: Organ and tissue donation doesn't interfere with having an open-casket funeral. The donor's body is clothed for burial, so there are no visible signs of organ or tissue donation. For bone donation, a rod is inserted where bone is removed. With skin donation, a very thin layer of skin similar to a sunburn peel is taken from the donor's back. Because the donor is clothed and lying on his or her back in the casket, no one can see any difference.

Myth: I'm too old to donate. Nobody would want my organs.
Fact: There's no defined cutoff age for donating organs. Organs have been successfully transplanted from donors in their 70s and 80s. The decision to use your organs is based on strict medical criteria, not age. Don't disqualify yourself prematurely. Let the doctors decide at your time of death whether your organs and tissues are suitable for transplantation.

Myth: I'm not in the best of health. Nobody would want my organs or tissues.
Fact: Very few medical conditions automatically disqualify you from donating organs. The decision to use an organ is based on strict medical criteria. It may turn out that certain organs are not suitable for transplantation, but other organs and tissues may be fine. Don't disqualify yourself prematurely. Only medical professionals at the time of your death can determine whether your organs are suitable for transplantation.

Myth: I'd like to donate one of my kidneys now, but I wouldn't be allowed to do that unless one of my family members is in need.
Fact: While that used to be the case, it isn't any longer. Whether it's a distant family member, friend or complete stranger you want to help, you can donate a kidney through certain transplant centers. If you decide to become a living donor, you will undergo extensive questioning to ensure that you are aware of the risks and that your decision to donate isn't based on financial gain. You will also undergo testing to determine if your kidneys are in good shape and whether you can live a healthy life with just one kidney.

Myth: Rich and famous people go to the top of the list when they need a donor organ.
Fact: The rich and famous aren't given priority when it comes to allocating organs. It may seem that way because of the amount of publicity generated when celebrities receive a transplant, but they are treated no differently from anyone else. In fact, the United Network for Organ Sharing (UNOS), the organization responsible for maintaining the national organ transplant network, subjects all celebrity transplants to an internal audit to make sure the organ allocation was appropriate.

Myth: My family will be charged if I donate my organs.
Fact: The organ donor's family is never charged for donating. The family is charged for the cost of all final efforts to save your life, and those costs are sometimes misinterpreted as costs related to organ donation. Costs for organ removal go to the transplant recipient.

*By becoming an Organ Donor you can save up to 8 lives~ That's a real life superhero!

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Save a Life* Be Someone's Hero* Be an Organ Donor

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen