I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Wednesday, April 28, 2010


My last couple posts were focused on negative aspects of my CF life. . .so tonight I thought I would focus on a positive or fond memory that having CF gave me.

Make A Wish is an incredible charity. They change lives, they make miracles happen for kids that really need a miracle. I was blessed to have been given a lifetime of happiness by the Make a Wish foundation. I think I have posted about my Make A Wish. . .but I am not sure. It was the single most incredible thing that having CF ever gave me. (CF camp is the 2nd greatest). Without having CF, I would not have the thing which brings me more joy in the world than just about anything else in my life.

I was just about to turn 11 yrs old. I had begged for a Palomino Pony for years. I had a fascination and love for horses that only grew stronger the older I became. My parents struggled to keep food on the table sometimes, so affording a pony for me was impossible. As much as my parents wanted me to have a pony, between raising 4 kids with me having a terminal disease, it was impossible. My mother is a horseman and my grandparents were cattle farmers, so I was exposed to horses and riding my entire childhood.

One night 2 men came to my house and sat me down to talk to me. They simply asked me 'If I could wish for anything I wanted in the world what would it be? I could go anywhere, meet anyone, do anything or have anything I wanted what would I wish for?' I am pretty sure it was less than a millisecond after they had finished asking that I replied "A Palomino Pony!". .. they then told me not very many kids that wish for horses get the approval from their doctors to have one, but they would work on it. When they asked me what my 2nd choice would be, I couldn't answer, my one and only wish was a pony.

Within a few weeks my wish came true. The pony was an 8 yr old bay welsh pony. I named her Penny and apparently she was pregnant, so I was going to be the owner of 2 horses. The colt was a sorrel pony/arabian, I named my new baby horse Princess.

Now 20 years later, we still have Princess, but the amazing thing is my wish for "a palomino pony" was carried out 17 years after I made it. Three years ago Princess had a colt. My beautiful horse Pixydust was born June 2007 and she is as Palomino as they come ~ Miracles happen!

That is the single best thing that CF has given me!

Save a Life* Be Someone's Hero* Be an Organ Donor

1 comment:

Anonymous said...


Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen