I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Monday, May 17, 2010

A little foggy

These last few days I have noticed I feel like I am in bit of a fog. My mind is 'lethargic' in a sense along with my body in fact. Today I really felt it. I admit that performing can wipe me out the next day, but today I was especially off.  If I sat for very long, I soon wanted to lay down and if I laid down it didn't take much before I was asleep. My arms felt heavy and I fought a headache almost all day. . . . I don't think I am getting sick though. I am thinking(hoping) that it is just my body adjusting to the new prograf levels. As I said before, while I was in Pittsburgh they raised my prograf a little, I am hoping I'm just sensitive to the dose increase and before I know it my body will adjust. I will be keeping an eye on it either way.

So this goes to show that even with bright, new, shiny lungs I still have those 'off' days. Days when I can't put my finger on exactly what I feel like. . but I do know I don't feel like myself. 

Anyway- Update on how my learning sign language online is going: I am really impressed with the website. The information and signs are all very easy to understand and the order in which they are taught really seem to be effective. I am retaining most of what I am learning. I have to review a few signs that I forget, but those too will come with time. I am now on lesson 6. Each lesson teaches about 20 or so new signs/words and reviews previous words through practice sentences along with a story/paragraph. At the end of the lessons I can take a quiz to test myself on how much I remember. It is really fun!
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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen