I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5
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Friday, January 14, 2011

Apparently no internship. . .

Which I am surprisingly okay with not hearing back from the casting agency's internship opportunity. For several reasons actually. . .I don't enjoy working for free, who does? But I felt like I left that in God's hands and I am satisfied that at least I applied for it. There will many other offers for me to do things as I explore what Norman, Oklahoma and 2011. I DO know that I DON'T know exactly what I am going to do and it kinda feels good to not have the stress of feeling like I need to make any decisions right now! whoohoo~

Okay. . .I heard back from my blood work. Some good news, some not so good. My Vitamin D levels has doubled (good news), but my Cholesterol was high (bad news). My creatine/kidneys was 1.2 (good news) but my Prograf was 5.6 (bad news).  I had some girl from the office call me with my med levels. . . .I had to contain myself when she started lecturing me on "You really need to try to take your prograf every 12 hrs split up evenly. . .blah. . blah. . blah". . .I tuned her out after that. REALLY?!! look lady, I am 3 yrs post transplant I have very, very few complications in those 3 years one of them being NO REJECTION. I cannot tell you how it drives me nuts when I am spoken to like a small child about how to care for my health. I have alarms set on my phone that go off at EXACTLY 9:45 am and then again at 9:45pm. I stop what I am doing and I take my meds at those exact times every day for the last 3 years!!!!! Without a nurse babysitting me. So please give me some credit lady!  *Big Breathe* 

Okay, so a little rant. . .but lab work looks okay. my prograf dose is going from 3.5mg am to 4mg am and at night from 4mg to 4.5mg. SO she increased my prograf by one mg. We'll see if that works. Apparently my target prograf trough is 8-10.  I wish Leslie would call in my labs cuz I just think she knows where I usually am at and so is better at gauging levels. (however, she seems to be the hardest person to talk to) she is very busy with many patients. :)

That's about the most excitement I have had today :)

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1 comment:

Stacey said...

Sorry about the internship... I also HATE being spoken to like a child by medical professionals...UGH... I just added your blog to my blogroll. I hope you don't mind.

January 14, 2011 at 8:40 AM

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Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen