I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Monday, May 2, 2011


Day one: Diagnosis. My story is relativity typical for late 70's early 80's. My parents had no idea they each carried the defective cf gene. I have 2 older healthier brothers and a younger sister who do not have cf. I have no other cousins or relatives that have Cystic Fibrosis. At first my parents thought I was a beautiful healthy daughter, their first daughter. So you can imagine the pain and sadness when they realized something was wrong me. I began declining and getting sick every day I was alive. I couldn't hold down milk and I quickly became weak. The local doctors diagnosed me with a 'failure to thrive' My parents said I was so weak that when I would lay in my crib I cried so softly it was hard to hear.

I was rushed to the University of Utah and my parents had to keep me overnight waiting to meet with the CF clinic the next day. . . my Father feared I was too weak and sick to make it through the night so he prayed to Heavenly Father and begged him to spare my life and he promised the Lord he would he would raise me to be a good person and I would return to him worthy of the highest Kingdom. God does hear prayers and works miracles.  I was diagnosed and treatment began. I had to spend some time in the hospital. My parents said when they would visit me the nurses would have my crib out in the hall which I enjoyed and I would smile and laugh my quiet, small little laugh. I think I loved the life I had been given even at that young age. My Parents truly loved me and they sacrificed so many things through out my life so I could live the most normal life I possibly could.

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen