I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Friday, May 27, 2011

Cultured Cepacia

About a month ago I had some PFT's done and they swabbed my throat. In Phoenix my cultures came back 'normal' but for the first time in a long time the culture came back "Cepacia". I am a little bummed about it, however I am feeling great, no fever, no drop in pft's and just a few days ago I ran a mile in about 9 minutes. So needless to say I don't feel any different and that is a good sign. The Cepacia could be culturing from my sinuses and drained a little into my throat. I will be starting some inhaled antibiotics to see if I can kill it. . .repeat PFT's in about a month and re-swab to check the cultures. I am praying that the cepacia doesn't effect my beautiful lungs and I can keep going full speed ahead like I have the last 3.5 years :) I am sure it will clear up with no ill effects. It's just never fun to hear that cultures come back with growing anything.

I hope ya'll enjoy your holiday weekend! I am off set and home. . .unfortunately Bryan has to work ALL WEEKEND and even on Monday, so I will be chillin' this weekend. Can't complain about that too much.

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen