I am typing this with tears streaming down my cheeks. . .it's too real, it could have been me.
I recently found out a Fibro I had some contact with in the past was in Pittsburgh listed for lungs. He was in bad shape. My heart went out to him knowing the situation he was in, because I walked the path just over 3.5 years ago. I try to share my story to help others know there is hope and to give them time to prepare. I was WAY too close to Death when I got on a plane to Pittsburgh. How close is too close? You don't want to have to ask yourself that. If you think you're close. . .you're probably already too close. It's a Miracle from God that I survived and that my body endured what I put it through. In fact I pushed it to the limits and a ventilator had to take over AND it had a hard time getting my lungs to breathe.
I cry because Brian Sercus got angel wings instead of lungs today. . . that's how my story could have ended as well. Brian was in Pittsburgh waiting. He was listed at the top as very ill. He got a call for lungs but they ended up being no good. The following day his CO2 levels became extremely high (mine did that as well) and he was put on a ventilator.
I remember when I first met/read a message he sent me as a comment on my video. . .it touched me dearly & I followed his progress a little to see how he was doing.
thank you. i have cystic fibrosis and cepacia, and i'm just about 28. i went to pittsburgh this past october to learn more about the program, but i was still on the fence. this video was filled with hope and love and sometimes it's good to be reminded that you can never have enough of either. i hope you continue to have a beautiful life. thanks again."
briansercus 2 years ago
I pray that someday there will be organs available for all that need them. I pray that awareness of the need will be every persons goal and choose to be an Organ Donor.
I pray that every adult CF patient talks to their loved ones and to transplant professionals and does the research to understand when getting listed is needed. Please Don't wait until you're too close and too sick like I did. If a transplant is something you feel may be right for you, start discussing it now.
Brian was obviously a very loved person and he'll be missed. It's just so similair to my situation that I can't handle it, I am so sad for his family but I find peace in knowing Brian is breathing easy with all the other CF angels.
~ Breathe Easy Brian ~
Save a Life...Be Someone's Hero...
Be An Organ Donor!
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