I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Wednesday, August 17, 2011

Heaven got another angel today

I am typing this with tears streaming down my cheeks. . .it's too real, it could have been me.

I recently found out a Fibro I had some contact with in the past was in Pittsburgh listed for lungs. He was in bad shape. My heart went out to him knowing the situation he was in, because I walked the path just over 3.5 years ago. I try to share my story to help others know there is hope and to give them time to prepare. I was WAY too close to Death when I got on a plane to Pittsburgh. How close is too close? You don't want to have to ask yourself that. If you think you're close. . .you're probably already too close. It's a Miracle from God that I survived and that my body endured what I put it through. In fact I pushed it to the limits and a ventilator had to take over AND it had a hard time getting my lungs to breathe.

I cry because Brian Sercus got angel wings instead of lungs today. . . that's how my story could have ended as well. Brian was in Pittsburgh waiting. He was listed at the top as very ill. He got a call for lungs but they ended up being no good. The following day his CO2 levels became extremely high (mine did that as well) and he was put on a ventilator.

I remember when I first met/read a message he sent me as a comment on my video. . .it touched me dearly & I followed his progress a little to see how he was doing.

"jamie,
thank you. i have cystic fibrosis and cepacia, and i'm just about 28. i went to pittsburgh this past october to learn more about the program, but i was still on the fence. this video was filled with hope and love and sometimes it's good to be reminded that you can never have enough of either. i hope you continue to have a beautiful life. thanks again."
-brian sercus
briansercus 2 years ago 

I pray that someday there will be organs available for all that need them. I pray that awareness of the need will be every persons goal and choose to be an Organ Donor.

I pray that every adult CF patient talks to their loved ones and to transplant professionals and does the research to understand when getting listed is needed. Please Don't wait until you're too close and too sick like I did. If a transplant is something you feel may be right for you, start discussing it now.

Brian was obviously a very loved person and he'll be missed. It's just so similair to my situation that I can't handle it, I am so sad for his family but I find peace in knowing Brian is breathing easy with all the other CF angels. 

~ Breathe Easy Brian ~

Photobucket  Save a Life...Be Someone's Hero...    
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2 comments:

Anonymous said...

Thanks Jamie.As Brian's mom, we went thru this journey together. Brian's bravery, as well as yours throughout this process is something I will never forget. He truly was an inspiration to countless people, and accomplished so much in his short time with us. Again I thank you for your kind thoughts of Brian, and will pray for you to have continued good health and to live your life to the fullest each day

Jamie said...

Beth,

Thank You for your comment. I know Brian was very loved and is very missed. I hope you liked my post. I was very compelled by Brian's journey & wanted to share what little glimpse I had into his life. I really am happy he is breathing easy. I have kept him and you (and family) in my prayers. I feel so close to other Cepacia patients/families, we are definitely a rarity.

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen