I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5
PitaPata Horse tickers

Friday, April 6, 2012

A week from now

Day 7: I love that I got to go to CF camp as a kid. It is one of the most treasured experiences of my life. I went to camp from the age 7-14, then I cultured Cepacia so I went to a CF camp designed just for the handful of us who had cepacia. I went to "Cepacia Camp" for about another 3 years. After that Cepacia Camp lost it's funding/support. Sometimes I am glad I grew up in a time where science hadn't caught up to CF, that might sound crazy but before the CF community became hyper-sensitive to cross infection. It was more about quality of life for us. It was a time where personal face to face relationships with other CFers was encouraged & Some of my fondest memories are from spending time with other CFers and sharing germs, hahaha.

Here are just a few pics from CF camp

 I won a hula hoop contest. . .I hula hooped over an hour
 These are a few of my CF friends I think of often and miss
 We were assigned counselors and we all shared a HUGE military style tent with beds & sleeping bags

I am happy for advances in treatments, medicine and antibiotics, but it came at a cost and for those of who lived in the good ol' days, we know the price.

Photobucket  Save a Life...Be Someone's Hero...    Be An Organ Donor!
Labels:

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

My Story - Pause Music Player First

Popular Posts

  • *WARNING * This is about Dying from CF. . . Not a cheerful post!
    For many years I honestly wondered 'what is was like when CF finally kills you'. It may seem a little bizarre and kinda twisted, but...
  • You can do it!
    Why do we talk ourselves out of doing things? It's an interesting thought that bounces around in my head quite often. Why do I let mysel...
  • Skin pre-cancer!!
    THE MOST COMMON PRECANCER: I had Actinic Keratosis on my upper lip. I noticed a sore form that just didn't go away after several weeks,...
  • Rejection
    What more can a organ recipient ask for than 9.5 years of healthy rejection free life. The reality is rejection is real and even as far out ...
  • I am not Barbie. . .
    We all have weaknesses right? I know I do. But how often are we too tough on ourselves? I know I am. I read a post from a friends blog, and ...
  • 2014 Quick Review
    The new year is quickly approaching and I guess before I decide on any "goals" for 2015 I am going to reflect on my 2014 :) 2014...
  • Pondering Life...
    I often ponder why my life is the way it is...I am happy and I'm torn sometimes. I don't regret any decisions I have made. I do howe...
  • Things on my mind....
    Okay so I have my music playing and I can sink into my thoughts.... So many nights I lay awake and I have thoughts bombarding my head that s...
  • My last week of school!!!!
      My life has been crazy! I have been getting my extra 200 hours of school required by Oklahoma and it's been exhausting. I'm doing...
  • Free Runs
    My New Running Shoes :) I haven't abandoned my love for Vibrams however, when I went to buy my another pair of Vibrams I wa unable to ...

My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen