I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Wednesday, August 1, 2012

Normal everyday life. . .

After blogging for almost 5 years I feel like I have repeated myself many, many times. I also ponder on what subject to blog about. I blog about my everyday life which may at times get monotonous and boring and most likely only interesting to myself. I would like to take just a moment to explain why I blog about everyday things in my life. I do it because I want to let people who may be facing the decision of undergoing a double lung, heart, liver, kidney or whatever other organ transplant they may be in need of. It's a tough choice. They may feel like the risk of surgery and rejectionis is worth it. It "may" only give them 2 years of life post transplant maybe more maybe less. . . so I blog about life. My transplant didn't turn my life iinto an exciting rollercoaster of fame and recognition, it just gave me my life back. I talk about my everyday events because those are what I treasure. Those are what I had hoped a transplant would give me.

It's real. My life is typical and normal. I spend time with my husband, my family and my hobbies. I hope that in writing about day to day things others realize that I am doing well, that I am back to 'my life' and they know I'm still healthy and happy. I feel it's important to show post transplant as real as it is. The Good, Bad and just the every day ordinary.

I hope that I am open enough in my posts that my readers understand that post transplant life is wonderful and challenging at the same time. The challenges are the emotional wreckage that the meds cause. They are hard on me sometimes. My personality is slightly altered however, the wonderful things I get to experience tips the scale so signigficantly that all of those 'stressful' things about post transplant life become barely noticeable.

So if you read my blog and think to yourself "well, this is a boring post" or a "repeat" or whatever thoughts come to your mind then I can only say that when I was searching bofore my transplant for someone, anyone who had a website/blog/newspaper story about a successful life post lung transplant with CF/Cepacia. . .I found only one and her blog was only a few posts then it just ended and I knew it was because she was no longer alive to blog. I however did enjoy reading her 'everyday, normal' posts about her short yet happy life post transplant. I just plan on blogging until I can no longer blog and after that I will pass the torch hopefully to my husband or my sister so that anyone that finds my blog will feel like I gave my all and then some to spread hope, happiness and an honest look at my journey through my double lung transplant.
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Ronnie Sharpe said...

I for one really enjoy your blog and although I don't often comment, I often read it. Keep posting cyster!!

Sherri said...

It is all the simple days that add up to a simply wonderful life. Thanks for helping me remember that fact.

Stephanie aka PinkPigg said...

Since when are cute Vespas, high heeled riding boots, and airbrushing skulls boring? Write on sister!!!

P.S. Thanks so much for sharing your story. It is great to read of someone enjoying life post transplant so much.

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen