It's real. My life is typical and normal. I spend time with my husband, my family and my hobbies. I hope that in writing about day to day things others realize that I am doing well, that I am back to 'my life' and they know I'm still healthy and happy. I feel it's important to show post transplant as real as it is. The Good, Bad and just the every day ordinary.
I hope that I am open enough in my posts that my readers understand that post transplant life is wonderful and challenging at the same time. The challenges are the emotional wreckage that the meds cause. They are hard on me sometimes. My personality is slightly altered however, the wonderful things I get to experience tips the scale so signigficantly that all of those 'stressful' things about post transplant life become barely noticeable.
So if you read my blog and think to yourself "well, this is a boring post" or a "repeat" or whatever thoughts come to your mind then I can only say that when I was searching bofore my transplant for someone, anyone who had a website/blog/newspaper story about a successful life post lung transplant with CF/Cepacia. . .I found only one and her blog was only a few posts then it just ended and I knew it was because she was no longer alive to blog. I however did enjoy reading her 'everyday, normal' posts about her short yet happy life post transplant. I just plan on blogging until I can no longer blog and after that I will pass the torch hopefully to my husband or my sister so that anyone that finds my blog will feel like I gave my all and then some to spread hope, happiness and an honest look at my journey through my double lung transplant.

3 comments:
I for one really enjoy your blog and although I don't often comment, I often read it. Keep posting cyster!!
It is all the simple days that add up to a simply wonderful life. Thanks for helping me remember that fact.
Since when are cute Vespas, high heeled riding boots, and airbrushing skulls boring? Write on sister!!!
P.S. Thanks so much for sharing your story. It is great to read of someone enjoying life post transplant so much.
Post a Comment