I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Thursday, March 7, 2013

5 yrs 3 months and going strong!

In just a few days I will be 5 yrs 3 months and I'm happy to report that my lungs are doing awesome. My pft's are stable at around 95%. I can't complain about that ;) I get asked by many CFers if getting a double lung transplant was worth it and I especially get asked "Would you do it again?" My reply NEVER has hesitation. Over 5 yrs ago I was hanging onto life by a thread actually I was hanging onto life with the help of the ventilator. It's a scary place to be, the last few days of my life was approaching quickly and I had NO control, Cystic Fibrosis is a disease and my lungs were diseased. I had no other options transplant was my only chance of being able to spend more time in this life with Bryan and my family. It was by far the hardest and best choice I ever made. It was a leap of faith for sure. I didn't know exactly how things would turn out. I had NO idea how difficult recovery was going to be, however once the healing began my life has been blessed and it has been the BEST 5 years of my life. I would be crazy to NOT want to do it again if it meant I would have the opportunity for more life. I think it's hard to get re-listed for a second transplant when you know there are patients who are praying for their first transplant. . .that is where I would be torn, but I still wouldn't let it stop me. I have tried to make a difference and do good things with the life I have been given. I share my story & journey with as many people as I can so that I can help others. My BUGHUG project is doing great things and the 3rd bag is just about ready to be completed. I have already exceeded my goal for that project this year. I'll easily get 5 bags out to patients by the end of the year! 

I believe that the goal in life for everyone should be to make a difference, be an example to others and help people. Service and Charity. I share my talents that God gave me to do those things. I am not famous and I am not asked to speak to large groups of people in the CF world or the Transplant world but I do know that my blog reaches the people who are searching for answers and if I can make a small difference in ONE other persons life than I feel like I have honored my donor and the sacrifice she made so I could live.

PhotobucketSave a Life...Be Someone's Hero...    Be An Organ Donor!

1 comment:

Sherri said...

Your transplant experience gives me hope that life can be good post tx. Very glad you are so healthy!

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen