In just a few days I will be 5 yrs 3 months and I'm happy to report that my lungs are doing awesome. My pft's are stable at around 95%. I can't complain about that ;) I get asked by many CFers if getting a double lung transplant was worth it and I especially get asked "Would you do it again?" My reply NEVER has hesitation. Over 5 yrs ago I was hanging onto life by a thread actually I was hanging onto life with the help of the ventilator. It's a scary place to be, the last few days of my life was approaching quickly and I had NO control, Cystic Fibrosis is a disease and my lungs were diseased. I had no other options transplant was my only chance of being able to spend more time in this life with Bryan and my family. It was by far the hardest and best choice I ever made. It was a leap of faith for sure. I didn't know exactly how things would turn out. I had NO idea how difficult recovery was going to be, however once the healing began my life has been blessed and it has been the BEST 5 years of my life. I would be crazy to NOT want to do it again if it meant I would have the opportunity for more life. I think it's hard to get re-listed for a second transplant when you know there are patients who are praying for their first transplant. . .that is where I would be torn, but I still wouldn't let it stop me. I have tried to make a difference and do good things with the life I have been given. I share my story & journey with as many people as I can so that I can help others. My BUGHUG project is doing great things and the 3rd bag is just about ready to be completed. I have already exceeded my goal for that project this year. I'll easily get 5 bags out to patients by the end of the year!
I believe that the goal in life for everyone should be to make a difference, be an example to others and help people. Service and Charity. I share my talents that God gave me to do those things. I am not famous and I am not asked to speak to large groups of people in the CF world or the Transplant world but I do know that my blog reaches the people who are searching for answers and if I can make a small difference in ONE other persons life than I feel like I have honored my donor and the sacrifice she made so I could live.
Save a Life...Be Someone's Hero...
Be An Organ Donor!
Favorite short of the day
2 weeks ago