I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Tuesday, June 3, 2014

Lung Functions and Labs

June 10th will mark my 6yr 6month post transplant mark! Last month my PFT's were down a little and my transplant doc was a little concerned...my FEV1 was 78% an 87% after albuteral. 
They weren't down a lot & I assured him that it was due mainly to the recent move to Oklahoma and the extreme allergy season here. I had not ad jested to the change in my environment yet. So he had me repeat PFT's a month later.... My FEV1 is now 95%
These are my PFT's from yesterday :) 
Needless to say he was "pleased" with my improvement. I started excercise 3+ times a week and started taking the occasional albuteral neb. I'm also pleased with my current lung functions. I'm so blessed.

LABS: ugh...I received a bill from the facility that I got my mandatory post transplant labs done and apparently MEDICARE denied coverage?! My portion as of right now is like $190.00. My doc wants me to repeat labs again but I cannot afford them of medicare stops covering them. I have contacted the lab billing, Medicare and my transplant center in hopes they'll figure out why this has suddenly become a problem. Stress is much harder for me to deal with now post transplant...so I'm really hoping it gets figured out. 

I'm still waiting to hear back from the Oklahoma state license board regarding my nail license :( so in the mean time here are my most recent work of art...my own nails. Lol

I'm looking forward to summer...and going home to visit Idaho :) 
*remember* Every day is a blessing ...every day is a miracle! 

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen