I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Tuesday, November 6, 2007

The battle against Cystic Fibrosis!



Jamie at 'Walk for Strides" To find a cure for Cystic Fibrosis. She loved raising awareness about how her illness. For the last five years Jamie and her JamieBug team would raise money every year with yard sales, raffles and with the help of local business that would do cash donations. She raised close to $8,000.00 in those years that she fought for her friends suffering with her disease. CF is a illness that you are born with most patients only live into their twenties. Jamie's upbeat love for life has helped her live past her normal life expectancy but with a double lung transplant, she could live even longer. Help us fight for her and her chance for a new, deep breath of fresh air!

1 comment:

Jamie Norman said...

Hi Jamie! My name is Jamie Lynn Norman. I just found out that I am going to have a transplant and that I should've been on the list 6 years ago before I left the care of LeBonheur Childrens Hospital in Memphis, TN. I have Burkholderia in my lungs and am so afraid that noone will do the transplant. But I just wanted to let u know how much u inspire me n that with God all things are possible. FAITH is my favorite word. I have watched several of my CF friends die w/cf the past three years waiting on lungs and it scares me. I have a 3 year old sweet baby girl who needs me n I need her. So i hope n pray to just be able to watch that sweet little face grow into a beautiful woman. U have given me faith. I saw your page and I got the feeling that maybe everything will be alright in the end. U definitely have God on your side n I pray 4 u. U can c my sweet baby Bailey on my myspace my sister made 4 me. www.breathlessjamie@myspace.com or my facebook- www.jamienorman@facebook I think thats how u find me. Please feel free to email me at jlnorman92@yahoo.com too. I thank u for inspiring me. And giving me (my other favorite word)HOPE! Thank u thank u thank u. Love, Jamie Lynn Norman

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen