I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Friday, July 18, 2008

Done with Dr Appt. & Bronch

We have enjoyed Pittsburgh so far! The weather here is beautiful! My Dr. Appt went very well- Dr. Pilewski was very happy with my progress and how well I am taking care of my health. We don't suspect there should be any rejection issues...I had the Bronchoscopy this morning. They usually wipe me out for the whole day! I am pretty tired all day- THey give me some pretty good drugs for the procedere. The Dr. that does the Bronchs said that my lungs looked really good. My lung function tests were still up and I got the clearance to run & swim and pretty much anything I want to do. They would like me to gain more weight of course...they want me CHUNKY???? I told them next time I see them I will be at least 105 lbs! Chocolate pudding here I come! Dr Pilewski is such a great doctor- I am so thankful to have him caring for me because that is exactly what he does....cares! He also said that if my bronch looks good (which it should), He will stretch out my time in between bronchs..I might only have to come to Pittsburgh every 3 months...unless a problem arises! So that is about 5 months earlier than we expected! He is rewarding me for doing so well I think! It pays off to listren to the Docs and do what they need you to do!

Our HOTEL Room Is really nice..we are at the Marriott- cool thing is in the night stand, there is a Book of Mormon! I just think that is cool. I will try to post some pics tomorrow- we are going to the "Harley Motorcycle Manfacturer" Guess who's idea that was??? So I am sure we will get pics of that! We are getting up at like 5am to drive 3 hours.....again Bry's idea, but he sat through all my testing and appts for the last 2 days so I AM HAPPY TO WATCH HIM HAVE FUN!

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen