I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Tuesday, December 9, 2008

Tomorrow I will be one year exactly from my transplant surgery!! It Is so amazing....my life has improved so much! I actually had lung function tests done today. This time last year I was on a ventilator, my oxygen sats were under 90% on 6 liters of oxygen, my lung function was down to 11% and I only weighed barely 85lbs. Today I weigh 100lbs, oxygen sats are 99% and my lung function is now.........103%. Ya you read it right! How incredible is this miracle!! The Lord truly healed me & made me whole! I can't express all the emotions that I am going through at this time. I am full of happiness and joy for life, I am humble and thankful for my blessings, I feel guilty that I have what others need.......I am hopeful for the future of transplants & for all the people with cystic fibrosis. There is still hope for a cure and advances with lung transplants!!

1 comment:

BreathinSteven said...

Hey You!!!

I'm so proud of you for getting through all you've been through -- and I'm so happy for you that you've made it with such flair!!!

Jamie -- when I dial up your blog and see that picture of Bryan kissing your cheek, and you with your big eyes looking up to heaven, it always makes me smile... And often enough, like today, it makes me cry...

I'm glad you're alive. I'm glad I can look at that picture and know that you really ARE that happy!!!

We've been given an amazing gift, Jamie -- you've had yours for a year tomorrow... I'll have mine for nine years in April... You make it pretty easy to tell that you're as deeply in love with your prince, as I am with my princess. I hope your journey continues and is as amazing as mine has been. Somewhere inside -- I know it will be...

You and I are so lucky -- we've experienced so much more in life than most will ever, ever-ever experience... Some of it has been very difficult, for us and those around us -- but if there could ever possibly be a reward for all we've been through, I don't know that anything could possibly top this gift...

I've been lucky enough to learn of the precious girl who saved my life... In my heart, her smile lights up the world like yours does for those around you... Donate Life Illinois made a little video of me I'm pretty proud of -- it's here... I hope someday you get to meet the family who saved your life -- and I hope they get to meet the precious life they saved...

You take care of those beautiful lungs, and that beautiful smile... Tomorrow is a very special day for you -- I know you'll cherish these days always...

Love,

Steve

Steve Ferkau
Chicago, IL

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen