Pondering my life with CF

I was laying here and watching youtube (love it!)....I was watching several Cystic Fibrosis and related videos. I found myself reflecting on what it was like before my transplant and the thoughts I had about transplants and my future. Living life was never hard for me.....yet living life was very challenging most of the time. I felt scared- I felt like no body around me really could understand, so I held a lot inside. I am not going to get all sappy and "feel bad for me" routine, that's not me...but as I watched this video (click "video" to watch it), It brought me to tears. I KNOW what they feel like.....they are not alone- Cystic Fibrosis is a very terrible disease, and yes like some of the Cystic Fibrosis world, the thought of a transplant is scary. A LUNG TRANSPLANT IS NOT A CURE. This disease needs to be cured! Not just a temporarily band-aid. I am more grateful for my Lung Transplant than almost anything in the world, I will always treasure the gift of life I was given, but too many children and young adults chose not to go through a transplant- they need a cure......
*Did you know? Cystic Fibrosis is the #1 genetic disease that kills children and young adults in America.....
*Cystic Fibrosis affects the Lungs, Digestive System and Reproductive system
* Research depends on Private and fund raising efforts
*There is no cure.....
*Cystic fibrosis occurs mostly in Caucasians whose ancestors came from northern Europe, although it affects all races and ethnic groups.
*About 2,500 babies are born with CF each year in the United States
*Approximately 1 in every 20 Americans carries an abnormal "CF gene" with no ill effects. For the most part these 12 million people are unaware that they are carriers.
*Life expectancy even with new medical breakthroughs and treatment is only mid 30's
*You can HELP.....visit www.cff.org (.90 cent on the dollar goes to research)