I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Monday, October 5, 2009

Remembering CF. . .

I was talking to a friend of mine and it got me thinking about what life was like pre-transplant. . or I guess life with CF. I so easily forget how I felt just 2 years ago. It's crazy~ and fabulous at the same time. I NEVER look back with regretful feelings. I treasure the experience and strength I gained in just the few months before my transplant. I was driven to know my Savior and prepared to be with him again. I found myself seeking out answers through scriptures along with books, talks, and a lot of prayer. I asked for and received MANY, MANY priesthood blessings which also gave me promises and hope. It was a very special and treasured time in my life when I feel I was the most spiritual I have ever been before and since. I surrounded myself with good and uplifting things everyday and I can testify that it is a transformation that can only be achieved through dedicating your time and thoughts to it. So easily we become consumed by the daily tasks of our mortal life, but I grew much closer to my Heavenly Father and Savior when I quit caring about my mortal tasks. . . not my mortal life, but trivial tasks that are easy to focus on and worry about. Money, Success, Credit Score, What others thought, and What others said to name a few examples. I found that spending time with my family, laughing, studying the scriptures, keeping an accurate daily journal to leave memories behind with loved ones was more important. Listening to uplifting music can heal a lot of pain and sooth a lot of fear. Laughing when you don't have much to laugh about,(even if I peed my pants when I did it), made me feel better.

Life is better now, I am in less pain, not pain free. . . but I feel so good, I can't imagine how I lived with CF. I have always treasured the poem 'Footprints in the Sand' I know I only saw one pair of footprints most of my life. . . . and if angels made footprints, there would have been thousands.

Save a life..."Be Someone's Hero"....Be an Organ Donor


Anonymous said...

Hi! I've been reading your blog for awhile and have a question! Do you not have CF anymore since the transplant? I always thought CF was a condition that affects more than the lungs. Just curious! Congratulations on your wonderful progress.

Jamie said...

I do and I don't. . I DON'T have CF in my lungs anymore. It won't come back either. But I DO still have CF in my digestive/pancreas, sinuses, reproductive and pretty much everywhere else CF affects. I now have to manage the side affects of a transplanted organ however. So I have less breathing treatments, but I have to monitor things closely, still do PFT's and a lot of bloodwork to watch for rejection. That will last my whole life.
Love the questions! You're welcome to ask me as many as you want! I am pretty open about all of it.

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen