I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Saturday, January 16, 2010

When CF WINS . . . .

Tonight I received news that an online Fibro passed away. This is how CF wins. He was waiting for a lung transplant. Above everything else I am sad for his family, loved ones and most of all fiance~ I am sad for their loss. It is a tragedy. I also find myself remembering so many other of my CF friends ones who were really close to me and I knew them well. I relive the pain of losing them every time another life is taken by CF. This is how CF wins. CFers fight a battle that has the odds stacked against us. A game that has a rigged ending. . . I love the saying "Never give up, never surrender" . . . but when you lose the ability to physically keep going, then surrendering is our only option. In the end I tried to fight it, but I wanted the pain to go away. This is how CF wins. I understand now how all my friends that passed away felt, and I know why they couldn't keep fighting. I was blessed to have received new lungs. . . . . I received another chance. Transplant is still a battle where the odds are stacked against me and the ending is rigged (rejection), but if CF taught me anything is was that I know how to fight. I hope to see the day when CF loses and a cure is found. I don't want to see CF take anymore lives. NEVER GIVE UP, NEVER SURRENDER! So put on your armor (ie: Meds, treatments, exercise, optimism, support) and together we will win! We fight for those we've lost and for every newborn with CF. We fight for each other. This post is for all my fallen CF warriors!!

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen