I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Friday, March 26, 2010

Pittsburgh Date Set!

I heard back from Pittsburgh and it sounds like we will be traveling there for a clinic check-up and *maybe* a bronchoscopy on May 5th. It will be almost exactly a year since I had one last~ I am feeling really great and I hope I stay this way :)

They also got the results of my blood work from earlier this week. They said pretty much everything looks GREAT! My kidneys were at a 1.3 (all the extra water is helping), my white blood count was 7, my 3 months blood sugar reading was a 5.5 (great!)~ I guess the only thing I need to raise is my Magnesium levels. . . I always forget to take it, cuz I can't take it with all my other meds. The prograf levels haven't got there yet~

I just gotta say how grateful I am that I DO NOT NEED INSULIN. Frankly, I am amazed. I was told by a couple of doctors I would most definitely have diabetes and need insulin after a transplant. Doctors have always expected me to get CF related diabetes, but I never struggled with my blood sugars. They are a little higher now, but not out of control. I really try to keep my sugar intake under control. No more gummy worms/bears/sharks/whatever every single day. I *rarely drink a regular soda and I have been drinking MORE water. I think all of that helps. I might some day still develop full diabetes and need insulin, but until that day, I will do what I can to prevent it :)

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1 comment:

Katey said...

YAY for the good lab results! And praying that if you do have the bronch in May, that all will go well, and you will get great results from it!

My magnesium levels are pretty low most of the time. I forget to take mine, or rather, like you mentioned, can't take it with most of my other meds. In addition, it upsets my stomach, and I hate to take it! Good luck getting that mag level back up.

I never had diabetes as a CF patient. I developed a slight case of "induced diabetes" a few months prior to my transplant from all the steroids and TPN, and then afterwards due to the same things. The docs told me I would never get rid of it and that most people post-transplant develop a case of it. I only had to keep track of my sugar intake and use insulin for about 6 months post-transplant and the diabetes eventually went away. I was so amazed and felt so blessed! I do watch my sugar intake, but it amazes me how normal my sugars are even after I have a milkshake or some kind of sweets! So I am celebrating with you!

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen