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Monday, March 22, 2010

Sores In The Mouth?

I have noticed that I more frequently get sores in my mouth. I also find that I get cold sore or cold like sores on my lips as well. This I believe is linked to my transplant due to the immune system supression. With a weaker immune system I would think viruses that cause these type of sores can more readily haunt me. In fact when I was in the hospital last year, my prograf levels were all over the place. I seriously had 10 painful canker type sores inside my mouth along with exterior cold sores that healed very slowly. The only relief I could find was Campho-Phenique mainly due to it's numbing ingredient. I honestly only got a cold sore once or twice a year before. . .but in the last 2 years I have had more than I can remember. It's incredibly irritating and a little painful~ I guess I will not be eating Salt and Vinegar potato chips any time soon :(

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1 comment:

bo said...

You're right in thinking you're getting these sores because of your anti-rejection meds, especially prednisone.

I'm sure you've mentioned this to your docs, and are they not concerned?

There are a couple of meds available, Zovirax and Valtrex. I'm sure the last thing you want is yet another pill to take, but it might be worth asking about. I mean, what's the point of going through a lung transplant if you can't eat salt and vinegar chips?!?!

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen