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Friday, May 7, 2010

Day 2

This morning came too early :) As I stated last night, the Doc decided to schedule a CT scan before my bronch was scheduled to see if the bronch could be canceled. . . The CT scan was scheduled for 8:45am which isn't too bad but here in Pittsburgh in order to get from one side of Pitt to the other you must past through the mountain tunnel. The tunnel is only 2 lanes!! So as you can imagine during heavy traffic times of the day it can be REALLY backed up, sometimes for miles and miles. We decided we would need to cushion the usually 15 minute drive. Traffic was only backed up 1.5 miles and was moving at a slow crawl so it wasn't too bad. We got to the hospital in about 40 minutes :) Then waited in the waiting area for another hour. (I was supposed to check in for my Bronch at 9:15 am) So my mother got a call from Pitt Bronch Lab looking for me :)

The CT scan did not take long at all. After about 50 minutes we got the call delivering the results and ultimate decision. . . . I was hoping for the bronch to be canceled which in turn means all is well & I wouldn't have to stress about the possibility of an infection caused by the bronch itself. However, I did not want to push not having a bronch and miss any rejection that would need to be treated!

I sit here in the hotel room after a crazy day of tests, more blood work and some definite sleep deprivation setting in. I am feeling good, I am hungry. . .and I apparently am not showing any signs of rejection because yes, the bronch was canceled and I am free to go back to Phoenix on Sunday and resume life as it was :) I won't be returning to Pittsburgh for a year! Unless I run into any speed bumps along the way!! So here is to a great previous year and to another great, healthy, happy year ahead of me! Cheers to me!

*I couldn't ask for better results or a better transplant team of awesome caring, knowledgeable, and professional people! I LOVE UPMC!

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3 comments:

Alice Vogt said...

Hi! Been following your blog for a while now, I also have CF, am almost 26 years old, and got my beautiful lungs very close to your date, 22 Jan 2008! Also just as blessed so far, never had any rejection thusfar... I 'm from South Africa, and find it interesting how our treatment post tx differ! Here the only bronch I ever had was the one right after surgery, which I'm not even aware of. We don't do routine bronchs, as they've found them ineffective (ie healthy patients got infection sometimes, and those they suspected had rejection had rejection). So here you get a bronch if they suspect rejection, and they start treating you for rejection even before the results are out. Also, you never stop seeing the Dr every 3 months. Even if you're 10 years post tx, you do lung functions and bloods (x-ray if Dr thinks neccessary) every 3 months. I prefer it like that, very comforting, lol! Anyway, I love your blog, find it very interesting!!!

May 8, 2010 at 2:26 AM
Denise Fahr said...

Yes! Cheers to you, Jamie! Great news!!!

May 8, 2010 at 2:33 PM
Katey said...

YAY for good news! Glad you didn't have to have the bronch, although I know you wouldn't have minded if needed to. Glad everything went well and you don't have to return for a year...awesome. Praying you feel good and don't hit any speed bumps during this time!

May 10, 2010 at 12:18 AM

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen