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Thursday, May 6, 2010

Day 1

First- Blood work. Everything looked pretty good. My magnesium levels were good, Iron was good, white blood count good, sugar levels also good. . . Prograf was a little low so that was upped a little and my Vit. D was also low, so that was added. Otherwise blood work is considered a success!

Second- X-RAY: Awesome! Clear and beautiful~

Third- Clinic/PFT's: PFT's were looking about the same. Which is a good thing. No decline is an indicator that I don't have an infection. . .and rejection is also less suspected. My FEV1 was a 90% and my FVC was a 98%, not too shabby :) My weight was up 6 lbs. . . which yes, that puts me over 100 lbs! My bronch scheduled for tomorrow late morning just might get canceled. My doc ordered a CT scan to get a better look at my lungs before he decides whether to cancel the bronch or not. . I think we are all hoping my CT scan looks good hence NO BRONCH. I understand the importance and need for bronchoscopies to catch rejection early, and if my doctor feels a bronch in necessary, then I will gladly get one!

*So Day 1 is considered a success! I feel like the dedication to taking my meds, exercise and keeping a close eye on my health has paid off. Well, I am pretty sure I am getting some help from above :) Seriously though, it is crucial to never let my guard down and forget I have 2 very important lungs to take care of!

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1 comment:

bo said...

Yay! Sounds like you're doing very, very well. And here's hoping they cancel the bronch!

See ya soon!

May 7, 2010 at 8:50 AM

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Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen