I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Tuesday, May 4, 2010

True Life Heroes

Got my bags packed! Well just one carry on zebra print suitcase :) Bryan and I have learned how to pack light after having to fly to Pittsburgh sooooo many times. I just want to share with everyone how much I LOVE my transplant team at the University of Pittsburgh. Even though it may sound like a broken record. . .

This world is full of good people, better people and great people. However, there are the few in this world who are truly amazing people. Those amazing people are true life heroes. Being that I have had a terminal illness my entire life, I have been some of the lucky few to personally know many of these amazing people. I have 4 in particular who I will always hold a special place in my heart. These 4 people are counted among my heroes.

First, Paul, my pre-transplant coordinator. Back in November 2007, he was the first person who told me "You need to come here, we can help you". Those were the words I had been searching and longing to hear. He not only told me that, but he was right. Paul wasn't just a voice on the phone 2000 miles away, but he was my hope. When I met Paul in person for the first time On Dec 3rd 2007, I knew I was in the right place and I immediately knew Paul was an amazing person. It all felt familiar and despite feeling my absolute worst ever. . .I had a comforting peace.

Second, Dr. Pilewski. I did not meet him until I was too sick to even remember our encounter. It was my last and final stop of my evaluation schedule. I honestly cannot recall any words we exchanged or what he may have told me. I was just hours away from my final curtain call in the story of my life. He had every reason to turn me away, to sadly shake his head and walk away. But he saw I had no one or nowhere else to turn. He knew I needed help. He had compassion. He is the most amazing person I have been blessed with in my life. I really don't know who makes the call, who makes the ultimate decision. . .but I knew Dr. Pilewski played a very large role. He is incredible. I know he cares about his patients. . . about me.

Many doctors are counted among the amazing people in this world.

Third is my surgeon. Dr McCurry. What an incredible calling and talent in life. My life was literally in his hands (and many others on the surgical team). I don't know how many surgeries he has performed, but I am sure it's many and will continue to be many more. He has since left Pittsburgh and is now saving lives in Cleveland.

I cannot forget my post transplant coordinator, Leslie. She keeps me in tip top shape. If I slack off one bit. . .I know I have to answer to her. If I have any problems or concerns I know she is always there. I know how busy and overwhelmed she is. She helps more patients than I can probably guess. I also know Leslie cares about her patients and about me. It takes a team of amazing people to do such amazing things!!

All of these people sacrifice their time and talents to save lives every day. They are all angels in my eyes. I thank their families for sacrificing time with them so they can be where they are needed to save people like me and thousands of others. This is one reason I am looking forward to my trip to Pittsburgh because I get to see these amazing people again.

Save a Life* Be Someone's Hero* Be an Organ Donor


Debbie said...

So nice to read this post Jamie as I am pre-tx being seen at Pittsburgh too. I really love everyone there especially Dr. P. I think he is an amazing physician, so knowledgeable, honest and caring. We are very lucky to have him in our corner aren't we?!

I wish you a super easy visit with great news to follow!
Safe travels :-)

Cammi said...

Hope you are having a successful week in Pittsburgh. Thinking of you!

Hanging out with the Riley's said...

Can't wait to see how it goes! I love you so much. I will be waiting to here all about it when you know how it went!

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen