I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5
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Saturday, July 31, 2010

956 days

I have breathed and lived with my transplanted lungs for 956 days. . . .it is weird to think of it like that. But I can guarantee that not one of those days has gone by that I didn't think of my donor and thank her for the gift of life she gave me. To say 2 yrs 7 months and 3 weeks just doesn't really do it justice. . .but when I think that I have woken up 956 times and been able to breathe, it's incredible. I have been able to spend time with people I love, do things I never thought I would do again.... and shared my story for 956 days.

I don't have a specific reason for choosing today to figure out how many days it's been, and even that is a close estimate. I was just thinking back to when I was hoping for new lungs, and I remember that I knew if I only got just one day of breathing with lungs free of CF, it would have been worth it. It was not easy at the beginning. . .but although one day would have been worth it, 965+ days is just miraculous. To put things in perspective once in a while is really nice.

At the same time, my donor family has spent 956 days without my donor in their lives. I am thankful to the sacrifices that are made by our donors and our donor families. It becomes something that perhaps gets pushed into the back of my mind, but it is always there. I am sorry for their loss and forever grateful for the life they gave me!

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1 comment:

Jesse Petersen (CF Fatboy) said...

956 and COUNTING!! Less than 2 months until 1,000 days! Keep it coming/going.

July 31, 2010 at 6:59 PM

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen