Yep, I am drawing a blank. I actually know I repeat myself a lot. I sorta feel like I have an automatic 'reset' button. Yep, I am drawing a blank. I actually know I repeat myself. . .wait a minute! It's not quite that bad. But it does happen. So if I repeat post or post subjects I probably wont remember doing it.
Is there really a CHOICE? The way I saw it was if I don't get a transplant, then I had a 100% chance of dying from CF and soon, or get a transplant and see what that life offered me. It obviously had more to offer me than the life VERY END STAGE CF offered me. What did I have to lose? A big fear for me was having to say goodbye to my family before the surgery not knowing if I would ever see them again. . .but once again by NOT choosing to be transplanted that was going to 100% happen!. The more I thought about it, the more I didnt't want to leave my family with any "what if's" and/or "regrets". I wanted to make sure I tried everything possible so if I did pass away, myself and my family would have closure. (That was the choice that was right for me. . .a transplant is a VERY personal journey and decision.)
I was scared about dying on the operating table but the hospital I was transplanted at eased my mind by telling me they hadn't lost a patient on the table in over 14 years. . .what a relief! Although I have heard some people say that transplants aren't perfected, & that is why they would not get one. . .my argument is neither is child birth, but thousands of children are born successfully into this world every day! In a perfect world Organ Transplants might be 'perfected' and flawless with no risks of rejection. However, in a perfected world. . .CF would be cured! Until then, organ transplants save lives and improve quality of life for most if not ALL patients.
I have blogged about the "HARD" part of life after transplant. It's not always rainbows and butterflies, especially when I woke up after surgery!!! I can't even begin to describe the pain, discomfort, disorientation, discouragement, depression, JOY, fear, and set backs. It was a LONG, Difficult process for me. It's different from patient to patient. .but from the other transplant patients I have gotten to know since my surgery, I have noticed almost all of them have something that was/is a hurdle in their recovery too. BUT once the body works out all the kinks of adjusting to all trauma and new meds, life gets good. . . really good!
MEDS, blood work, clinic appointments, chest x-rays, PFT's, bronchoscopies, inhaled or IV antibiotics and physical therapy (exercise). Those are the things I deal with post transplant. . . .any or ALL of them sound familiar to a Cystic? YEP, so nothing we can't handle right? Also most of that stuff is frequent only the first few months or year post transplant! (Each center does it a little differently)
9:25am: I take my handful of meds. including anti-rejection (takes two seconds)
Lunch: I take my vitamins (takes two seconds)
9:25pm: I take my second dose of anti-rejection (takes two seconds)
Daily: Stay active/exercise, watch my diet, take my medications
Weekly: (monitor for early signs of rejection) Track my lung function with hand held micro-spirometer & Track my temperature,
Monthly/Annually: Clinic appointments which sometimes includes PFT's , X-rays, and/or Bronchs
Honestly, post transplant care is easy compared to the daily routing we have caring for CF lungs. Don't get me wrong, life post transplant can be stressful and it's not "perfect". . .but I would do it all over again because all the pro's outweigh the cons 10 fold!
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