I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Monday, September 27, 2010

CF Family Educatoin Day

I had an appointment to get PFT's, my scores ROCK! My FVC was 111% and my FEV1 was 93% I can't complain about those numbers!!! Also while I was there I was asked to be a panel speaker at the Phoenix Children's Hospital CF Family Education Day! I was asked to speak about lung transplants. My experience and what life was like for me pre and post transplant!!! I am happy to do it for them since they so generously gave me plane tickets to Pittsburgh when I had to go back in May! They are a great center and I am really excited to share my transplant experience & hopefully help other Cystics who may be facing making that decision! I will speak on October 9th. . .so I will let ya'll know how it goes!

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4 comments:

Denise Fahr said...

AWESOME, AWESOME, AWESOME NUMBERS!!!!

Pam said...

DITTO WHAT DENISE SAID!! AWESOME NUMBERS!!!! AND CONGRATS ON THE SPEAKING ENGAGEMENT!

Tiffany Davis Brock said...

Hey Jamie,
My husband will be at that panel discussion. Hoping he can meet you. Looking forward to hearing about your experience as we are facing that decision right now.

Cammi said...

Awesome opportunity! Great job creating awareness!

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen