I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Monday, January 3, 2011

Frustrated and bugged

I am trying to get settled in Norman. It's been kinds tough. For one. . .I am hoping to find a hospital/lab to start getting my blood work done. It's is difficult now that we are down to just one vehicle which Bryan takes to work early every morning. That makes things hard. There is not a hospital/lab within walkng distance like there was in Phoenix. I am going to look into a home health nurse to come draw the blood at my apartment, but I am not sure if medicare covers that. I will find out. I also called the CF adult clinic last week to schedule an appointment, but the office was closed for the last 10 days! I received an email from my doctor telling me that they have not been receiving my labs and PFT's. The last PFT they have on file is from May which was when I was in Pittsburgh last!! I know I had 2 done in Phoenix since then. I found the blog post from Sept where I happen to post my PFT results. It just bugs me that I am told the results are faxed, but at some point they don't get from point A to point B. It just makes me look bad! The draw back to being so far from my transplant center I guess. I shouldn't have to be babysitting either hospitals they should be able to communicate and work together! So tomorrow I am going to go into Norman Regional and get the information I need to get labs done then I have to get my rent paid. Bryan has to be at work at 2pm. . .so tomorrow is the only day to get it done this week. It's things like this that just eat at me so bad to the point I can't sleep. I am frustrated and cannot do anything about it! . . .. .okay. . . . . counting to 10. . . . .moving forward. . . .what's done is done and I can only move forward and make sure this doesn't happen again. Right?

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen