I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Friday, February 18, 2011

I knew it would pass

I am feeling more and more every day like the upbeat positive 'jamie' that I know myself to be. I can feel when my meds are off or I notice more side effects and that is usually followed by a 'slump' but I am back on my 'high on life' attitude! It helps that the weather is freaking amazing this week!!! In the mid-high 70's. I am wondering if all the sun shine and warm weather in Phoenix helped me from feeling down, cuz I don't remember feeling 'ugh' as much there. Even when I had nothing to do I could always go out and absorb vit. D out by the pool YEAR ROUND! No looking back though . . . only forward!

Today I spent most of the afternoon at the casting office doing work for them. It was mostly 'secretary' type stuff, but I like being there and it's a positive environment which I really enjoy!

OKLAHOMA CF CLINIC SUMMARY
I also had an appointment yesterday for an initial clinic visit to the CF clinic here (Oklahoma City) and I must say it went very well. They always seem to now post transplant, but I was slightly concerned what my PFT's would be since I am just getting over the cold I caught. Everything looked pretty good!! My FVC was like 109% and my FEV1 was 92% so no complaints. They are a little lower than they have been in the past, but with the move and environment/altitude change it will take a few PFT's to figure out my baseline here. Either way it's only slightly lower and I am not concerned with the drop. I weighed came in at almost 102 lbs and of course as much as I wish I could change it, my height was just 59 inches. The clinic is relatively easy to drive to, it's about 1/2 hour drive into Oklahoma City and I will only need to go in about every 2 months. So in summary I feel good physically and emotionally. I really hope all is well with you!

*On a side note: I hate to admit this, but I have not gotten my port flushed in almost a year. . . .Debbie (the nurse) accessed my port for me. It was like gambling. . .I wasn't sure if it would give a blood return or be clotted off. I was absolutely releaved when I looked down and saw beautiful healthy blood filling the tube! It flushed like a dream :) *BIG SIGH* I have an awesome port!

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5 comments:

Somer Love said...

Awesome!!! Glad you are feeling better and holy cow an year..... That is crazy! Glad it still is working well.

Xo

Jamie said...

Yeah, believe me. . .I was nervous about my port. I have the green light to get it removed, I am just dreading another surgery when my port seems to be fine :)

Bo said...

Great news!

Kristie said...

just wondering, why do you still have a port if you haven't used it for over a year? and isn't getting it out a pretty simple surgery? :)

Jamie said...

good question Kristie. . .in some ways it's an emotional reason. My port is a part of me and has been for so long that It's kinda seems like it's my security. I just fear that I will get it removed and then I will have complications and wish I had it. . . so it's fear, it's hesitation to get yet another surgery. I worry there would be complications from surgery ie: infection. I think I will get it removed some time this year. Just not sure when and where to have it done. :)

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen