I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Tuesday, April 26, 2011


Today I had some PFT's done. I was wondering what they would be, I feel great but I have had some stuffiness and allergy type of symptoms. Still trying to figure out how the environment and elevation here in Oklahoma is gonna be for my lungs. My lungs LOVED Phoenix. I had the highest PFT's when I lived there! But today they were down a little but not significantly. My transplant center is concerned if there is a 10% or more drop. My results were:

FVC . . 3.09 liters. . 106%
FEV1. . 2.23 liters. . .87%

So then they gave me some albuteral and my results looked like this:

FVC . . 3.20 liters. . 109%
FEV1. . 2.36 liters. . .93%

So about where I usually am after a little pick me up from some albuteral. My blood pressure is a little high though, I'm going to monitor it daily for a week or so and see if it's actually high then call Pittsburgh and see what they want to do about it. It was 148/79 today! Bleh. Norman for me is like 120/70. I also got a new blood sugar monitor so I can track my sugars really good this week and see if they are a little high, cuz I guess it can effect blood pressure. Small maintenance things compared to my life pre-transplant. . .so I am happy to deal with them.

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen