I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Saturday, March 24, 2012

After 4 yrs still going strong!

My pft's are really stable and I am so very grateful. It's interesting though when I got looking at the print out of my PFT it says 89% FEV1 but at I KNOW that up at clinic they were 90%. Maybe the computer printed this one cuz my FVC was slightly higher or something. haha I won't complain about these numbers. When I was in Phoenix they were a little higher but elevation, climate and allergies I think play a part in all of it.
I get copies of all my pft's and keep them (I have lost many of them) but I surprise myself and find some old ones.

This one is from 2003 which is almost EXACTLY 4 years before my transplant. I noticed my FEV1 was only 30%. . .that's low enough to have been evaluated and listed for a transplant, however in 2003 I was working FULL TIME at Wall2Wall Flooring and working out 5 days a week. I wasn't on oxygen (although I might have needed it) and I was still performing with the Blackfoot Community Theater. I look at all the things I was doing at that point in my life and I see my lung function and I honestly wonder how the heck I did it!! I was at able to keep up with every "healthy" person in my life with only 30% lung capacity compared to their 100%. SO in perspective I was capable of working over 300% more than them. Most people can say they give 110%. . .well I gave 300%. Hahaha! Just interesting to reflect on what life WAS then compared to how life is today.
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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen