I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Sunday, November 11, 2012

Good News!

  Nothing but good news!! Returned home from Pittsburgh with a clean bill of health! In fact they found me to very healthy. My lungs look great and my pft's were very good as well.  My FVC was 113% and my best FEV1 was 94%. I'm definitely not going to complain about those numbers after almost 5 years. I am just under a month away from my 5 yr post transplant anniversary. . .I feel great, and NO REJECTION.

I had my worries as most of us post transplant patients probably do. I enjoy my post transplant clinic because I get to see all my transplant team members which is always something I LOVE. However, I get nervous that my borrowed time or I guess I prefer my 'gifted time' with my wonderful disease free lungs will somehow come to an end. The thing I am most afraid of is rejection. I cannot deny that my incredible success and health is a miracle. A gift from God. That is the only honest way I can explain why I'm doing so well.

While I was In Pittsburgh it wasn't all business. . .I had some fun too. We arrived a couple of days early because the flights were better earlier in the week than later. We got into Pittsburgh and then drove to see Niagra Falls which was incredible. After that we headed to Palmyra, NY and visited some incredible church history and sacred places. Places I never thought I would ever get to visit in my lifetime. My Donor has given me so many gifts including experiences like this.
We had Clinic on Thursday and everything looked healthy and my Doctor had nothing but positive things to say. He said my blood sugars, liver, kidneys and lungs all looked good. He mentioned he wished all his patients did as good as I do. That's a pretty awesome compliment even though I cannot take much credit for it. There is a higher power and many angels watching over me.

Friday we drove to Philadelphia and had cheese steaks from Geno's and Pats... I like them both! Then we went to Independence Hall and toured some American History. It was incredible and learned a lot. It's really quite a blessing to be able to go to the east coast where there is so many facinating places that are a MUST SEE in your life time. I am so lucky.

Okay I want to spend a little time talking about my "BUG HUG" project. I took my first bag to Pittsburgh. I figured the it was an appropriate place to start with. The place that took a chance and saved my life. I left the bag in good hands though. I gave it Paul my pre-transplant coordinator who has promised to find the perfect patient who's situation is similar to mine and who will really use and appreciate all the gifts. He'll send me pictures of the recipient when he gives it away. I'll be sure to post them when I get them. I'm hoping I can really get the Bug Hugs doing well and give more bags away than I can keep up with. lol.

I'm excited to prepare to celebrate my 5 years of wonderful, amazing, miraculous life! Any suggestions on how I should celebrate?
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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen