I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Saturday, October 24, 2015

"I Lived"

As I sit in this busy, loud, cramped airport terminal gate waiting to return home from my 8 yr Post Double Lung Transplant check up from UPMC...I have the capability to block out all the chaos and anxiety of traveling with a simple song. I have my headphones plugged into my ears to block out all the noise and focus on the words that speak to my spirit more than anything right now...."I swear I lived" (song by One Republic). Those words have so much meaning and power for me now more than ever before. 

My checkup with the amazing and compassionate Doctor Pilewski was better than I could have ever dreamed. Eight years after he and the team of surgeons, doctors & nurses saved my life when they had every reason to say "no, she's too sick...she has Cepacia...she lives too far away..." But they didn't. They took a chance on a young woman from Idaho who they'd never met...who just showed up in their hospital in desperate need of their help. And in the words of Joe (my doc) "Jamie, I'm glad we took a chance on you 8 yrs ago" those words bring me to tears every time I think about them. It's so true, they all took a chance...one that they didn't have to...one that most hospitals would not have done. He says he remembers meeting me...knowing If I didn't get a transplant I would have gone home to Idaho in a pine box. That's the absolute truth. 

After (almost) 8 years my donor lungs are clear and working fabulously! The X-Ray looked so clear... No white spots anywhere 😊 my Pulmonary Lung Functions are steady: FVC 103% FEV1 89-90% my weight is nice and healthy, kidneys are working good...my oxygen Sats were 98% and my blood pressure was perfect. Not only have "I Lived" but I'm living beyond what any medical professional would have thought 8 yrs ago. 

I know my health is not the "typical" results for every CF/CEPACIA transplant however, I am so very thankful. If I can do it so can other patients. It's worth fighting to "LIVE" 

We also enjoyed some sight seeing in Pittsburgh & Wash DC :) my amazing husband is truly lives me & takes such good care of me. He took care of all our travel arrangements so I didn't have to have any added stress. 

Even during my recovery after my transplant when I had to fight harder, dig deeper, and pray my hardest than I ever had my entire life...I Never gave up...remember to always have hope!! 

My life is amazing, and hard sometimes, but it's always a gift...


Jamie said...

That's so awesome and inspiring! Love that song too

CallieJoy said...

I know this is an old post but I have just been reading your blog because I just had a lung transplant last December. I have my print out of my clinic visit from this week in front of me and I find it very interesting to compare numbers. My FEV1 is at 2.56L but yet the percentage I am given is 75% but yours is 2.42L and 89%. It's interesting to see that different places much have different criteria for determining FEV1 percentages. My goal is to get my fev1 above 80% by my 1 year appointment.

Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen