We are in Pittsburgh.......it's beautiful here! Everything is so green. I heard today there was 3 inches of snow home in Eastern Idaho!!! I am glad we are here-it was around 70 today! we walked around town a little....went to the mall- I bought the COOLEST skull neclaces and earings! Dr. Pilewski said.."such a sweet girl, wearing skulls??" I said "I am sweet, but I have a little wild side!" He is such a great doctor!!! He cares sooooo much about his patients. I am so lucky that I am in his care. My PFT's (lung function) was up to 84% and my weight was 97.2 lbs! He was happy with my progress. Tomorrow is my bronch-I hope I don't have rejection....or cepacia. If I don't culture cepacia, then I might be off inhaled fortaz in 1 month!. He even mentioned that in another few months, they might remove my port-a-cath! My third boob will be gone!! All of those things will depend on how well I do. He said he forsees me having many heatlhy year ahead of me...he is very optimistic! Well I will post as soon as I know results from the bronch.
Love ya'll,
Jamie
2 comments:
Jamie,
It was so nice to meet you and Bryan last night. You are truly an inspiration to me. I was terrified of transplant until I heard about you and read your blog. I am praying that all goes well today. I will look forward to hearing the results.
All my love, Nancy
Jamie,
It is so good to see that you are doing so good! I miss you terribly and I check your blog daily. (I know, a little creepy!) Last time we were home, we didn't get to see you because you were sick and we were kind of sick. It has been over a year, and I hate it. I am so proud of you and Bryan for the light you bring in to all of our lives. Best of luck in the morning, you will be in our prayers!
Love,
Candi
P.S. Check out my blog @ candibird.blogspot.com
Post a Comment