I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5
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Thursday, May 1, 2008

We are in Pittsburgh!!


We are in Pittsburgh.......it's beautiful here! Everything is so green. I heard today there was 3 inches of snow home in Eastern Idaho!!! I am glad we are here-it was around 70 today! we walked around town a little....went to the mall- I bought the COOLEST skull neclaces and earings! Dr. Pilewski said.."such a sweet girl, wearing skulls??" I said "I am sweet, but I have a little wild side!" He is such a great doctor!!! He cares sooooo much about his patients. I am so lucky that I am in his care. My PFT's (lung function) was up to 84% and my weight was 97.2 lbs! He was happy with my progress. Tomorrow is my bronch-I hope I don't have rejection....or cepacia. If I don't culture cepacia, then I might be off inhaled fortaz in 1 month!. He even mentioned that in another few months, they might remove my port-a-cath! My third boob will be gone!! All of those things will depend on how well I do. He said he forsees me having many heatlhy year ahead of me...he is very optimistic! Well I will post as soon as I know results from the bronch.


Love ya'll,

Jamie

2 comments:

Nancy said...

Jamie,

It was so nice to meet you and Bryan last night. You are truly an inspiration to me. I was terrified of transplant until I heard about you and read your blog. I am praying that all goes well today. I will look forward to hearing the results.

All my love, Nancy

May 2, 2008 at 3:52 PM
Rayce & Candi said...

Jamie,
It is so good to see that you are doing so good! I miss you terribly and I check your blog daily. (I know, a little creepy!) Last time we were home, we didn't get to see you because you were sick and we were kind of sick. It has been over a year, and I hate it. I am so proud of you and Bryan for the light you bring in to all of our lives. Best of luck in the morning, you will be in our prayers!
Love,
Candi


P.S. Check out my blog @ candibird.blogspot.com

May 2, 2008 at 8:12 PM

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen