I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5
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Monday, January 26, 2009

I want to start a charity!!


OK- I have been thinking alot about what I want to do with all this time I have on my hands lately! I have been very involved in raising funds for Great Strides for a cure for Cystic Fibrosis...but I want to do more! I have thought of alot of ideas and I want to create "Jamiebug Hope for Lungs" I want to start by creating duffle bags/luggage filled with specific items that will be given to CF patients recovering from a transplant... The Bag will include a handmade quilt with the jamiebug hope for lungs logo (which I am open to designs), an ipod that has the Josh Groban songs that got me through my transplant journey, an itunes card-so they can add thier own songs, a new camera so they can capture every moment of thier new life, My story or a book including several other survivors stories, a scrapbook or a journal, the scriptures and I would like to include a pre-paid credit card of at least $1,000.00 for them to spend on themselves when they get out of the hospitala along with a card signed by everyone involved! We can definately add to the bag as we come up with more ideas! Maybe even get the logo put on the bag! I will need a committee in order to create a non profit organization- so if you're interested in being a part of this, let me know! I have some great ideas for fundraising...including motorcycle rallies & horse trail rides. I know we can get creative! I am really excited about this! I am going to get started on designing a logo, and getting info on getting a non profit licence thingy... we can do more than just the bags..I want to do Segways for CF by donating a Segway to a deserving CF patient who would benifit greatly from getting mobile again....like it did for me!

I feel like I can make a difference and help brighten the lives of Cystic Fibrosis patients facing the fear of transplant. I know first hand that little things like this make a big impact on recovery! If you are a part of this, you will be doing something great!! I think there are great charities raising money to find a cure...but I want to go back to the philosophy of making an impact on the patients lives-give them something to make living each day a little easier!

2 comments:

Hanging out with the Riley's said...

You know I am with you all the way baby!

January 26, 2009 at 5:25 PM
S said...

Count me in, I'll help out from afar!

January 27, 2009 at 3:38 PM

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen