I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Tuesday, April 20, 2010

Medical Worries

Post transplant has been tranquil at times and other times I find the stress of medical worries creeping their way into my life. I expected as much, but when days, weeks, months go by without a cough, sniffle or even hint of needing to see a doctor, worries magically melt away. One of my biggest MEDICAL STRESS' is still insurance coverage. I honestly don't think that will ever magically disappear. Because of the county I currently reside in. . I had an impossible search for a supplement plan to my medicare. None would have covered me in Pittsburgh anyway, they were all PPO. So I am going through this year with JUST medicare~ I am actually a little scared at my 20% copays from my upcoming Pittsburgh trip. However, I think there can be a few advantages (or at least I hope so).

One of our biggest expenses and worries is getting to and from Pittsburgh. Normally we can only afford to fly 'stand by' and have been grateful to Bryan's brother who makes that a possibility for us. However, this time my CF clinic here in Phoenix has given us a much needed gift. I see a clinic at the PHOENIX CHILDREN's HOSPITAL. I started seeing them only about 5 months ago. They were so generous and offered to qualify me for a program they have through Southwest Airlines that would give me and my husband round trip tickets for my medically necessary travel. What a blessing in our lives. With Bryan attending school, it has been difficult for us. He was able to arrange the time off from school along with his work. His work was perfectly okay with him taking the time off and even told him that if anything happened (like last time) to let them know and they will make arrangements for the extra time off he might need. So far this is an entirely different experience from my last trip to Pitt. We are truly blessed every day~

Medical stress will always be a part of my life. The difference is now my stress comes and goes and it is reduced by 200%. This just reinforces and reminds me that a transplant is not a cure. . . doctor visits/bills, procedures, medication, and even hospitalizations are still a part of my life. The difference is they are just a small part instead of before where they consumed my life. :)

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2 comments:

bo said...

I love that NOW you worry if you're NOT coughing. How backwawards life can get.

That's really nice of them to fly you and Bryan out there. We'll figure out how to meet up with you all, either in Pittsburgh or Cleveland.

Nancy said...

Jamie, I am relieved for you to hear that your flight expenses are being covered.

You may want to look in the Patient Access Network for help with prescription expenses, I think you would qualify. Their website is www.panfoundation.org . They provide assistance for CF and transplant.

It is unfortunate that our country doesn't care for us the way other countries do their CFers.

My love to you! Nancy

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Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen