Medical Worries

Post transplant has been tranquil at times and other times I find the stress of medical worries creeping their way into my life. I expected as much, but when days, weeks, months go by without a cough, sniffle or even hint of needing to see a doctor, worries magically melt away. One of my biggest MEDICAL STRESS' is still insurance coverage. I honestly don't think that will ever magically disappear. Because of the county I currently reside in. . I had an impossible search for a supplement plan to my medicare. None would have covered me in Pittsburgh anyway, they were all PPO. So I am going through this year with JUST medicare~ I am actually a little scared at my 20% copays from my upcoming Pittsburgh trip. However, I think there can be a few advantages (or at least I hope so).

One of our biggest expenses and worries is getting to and from Pittsburgh. Normally we can only afford to fly 'stand by' and have been grateful to Bryan's brother who makes that a possibility for us. However, this time my CF clinic here in Phoenix has given us a much needed gift. I see a clinic at the PHOENIX CHILDREN's HOSPITAL. I started seeing them only about 5 months ago. They were so generous and offered to qualify me for a program they have through Southwest Airlines that would give me and my husband round trip tickets for my medically necessary travel. What a blessing in our lives. With Bryan attending school, it has been difficult for us. He was able to arrange the time off from school along with his work. His work was perfectly okay with him taking the time off and even told him that if anything happened (like last time) to let them know and they will make arrangements for the extra time off he might need. So far this is an entirely different experience from my last trip to Pitt. We are truly blessed every day~

Medical stress will always be a part of my life. The difference is now my stress comes and goes and it is reduced by 200%. This just reinforces and reminds me that a transplant is not a cure. . . doctor visits/bills, procedures, medication, and even hospitalizations are still a part of my life. The difference is they are just a small part instead of before where they consumed my life. :)



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