I have heard thy prayer, I have seen thy tears, behold I will heal thee.
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Thursday, August 5, 2010

My Transplant Sisters

I have many 'life decisions' rolling around my head every day. Things from 'why was I given a second chance' and 'what is my purpose in life now'.  It's quit interesting that before my transplant my purpose in life seemed so clear. I knew I wanted to beat the odds against CF.  I knew what fight I was fighting, everything was familiar and my life kind of had my ending already written. . . in a sense. But now that my life has been gifted back to me and improved I must say, I find myself pondering my purpose.  I guess this is normal for someone my age. . .turning point in our lives, but for me. . .I honestly never planned my life much past 30.

Many of the things I think about are very unique to my situation. The side effects of all the medications I take, getting to know the new me, and once again the life long question . . "What now?" I have the privilege of having friends who are also post double lung transplant. I feel really close with one friend particularly and she is CF/Cepacia as well. It is such a blessing to have her to talk to. We actually desire some of  the same things in life. She REALLY does know what life is like for me now. Of course we have our differences in situation and circumstances, but we 'get' each other.

There are plenty of things in my life that are hard to accept. I cope with them the best way I can. But if I was alone and without my transplant sisters. . .I know I would be a little lost.  So for those of you who know who you are. . .Thank You. . . For understanding, for sharing your fears, concerns, disappointments and joys in your lives post transplant.  It makes me feel like there is someone out there who understands me. . . .who "gets" me.

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen