I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5

Saturday, June 16, 2012


Great News!!!! First off I got PFT's  done today and my numbers are nice and steady :) FVC was 107% and my FEV1was 88% Not going to complain about those numbers. Esspecially since I am 5yrs 6months post transplant. However, when I looked back at my PFT's since last fall my HIGHEST lung function was when I was training for my 5K, I know what needs to be done ;)
 We sold our Chrysler Sebring Convertible finally!! It's a relief and the money we got out of it will help pay it off to my Mother in Law.

I found a 2004 Vespa GT200 Granturismo for around 2K and wouldn't ya know. . .Bryan spoiled me rotten and let me buy it :) I'm so giddy about it. It needs a few alterations/customizations to accommodate my very "petite" build. I have found a custom upholstery guy here in NORMAN who does excellent detail and high end work. His stuff is amazing! He upholsters and fabricates. He is building my seat from ground up. While leather with a pink skull/flame stitched in~ It will be a super low profile to get me closer to the ground.  I will probably still need healed boots to be flat footed. But I'll make it work.
As you can see my feet currently do not touch the ground. LOL

I head to Idaho in  12 days! I have so many exciting things happening in my life it's stresses me out. . .but in a good way ~ I am looking forward to seeing my Grandma, My mom, My sister, Bryan's family, my nieces and nephews, my Dad. . .well everyone actually. Most of all though, my horse!!

That's a quick update of how I have been doing :) Oh and here is a pic of the new "gold" DONATE LIFE decal  put on my VW bug.

                               Save a Life...Be Someone's Hero...  
Photobucket   Be An Organ Donor!

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen