I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5
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Sunday, February 19, 2017

Bucket List: LADY GAGA!!!!!

So I'm a HUGE fan of Lady Gaga and I would love to see her in concert, I never thought I would ever  have the opportunity well....she's coming to SLC, UT on Dec 14th just 4 days after my 10 year transplant anniversary!!!!!! How I would love to go. But in reality something like that I would love to get VIP meet & greet tickets. Which I will never be able to afford. If anyone knows MS. GAGA please hook me up lol!! Wouldn't that be the most awesome way to celebrate my BIG 10 yr?? Miracles happen right? 😊

Life Update:
I've been doing okay, I'm still in the appeal process with SSDI (it's been over 6 months now) they didn't continue my benefits despite me requesting it and getting my paperwork in...they conveniently misplaced it. My stress/anxiety has been through the roof despite my meds I take to control it. I've been going to a spine/ pain specialist for my back and joint pain.....it's so hard dealing with doctors who really know nothing or very little about CF and transplant. It's difficult some days to not lose hope. The days that I barely have the motivation or energy to get out of bed waking up with pounding headaches and back pain and when I do get up I still feel tired and lethargic.

I like to be pretty real and not sugar coat life post transplant here on my blog. But like most CFers not many people in my life would know or even suspect I feel terrible quite often. We are made "CF strong" so we keep up and live with the trials we've been dealt in life.

I'm praying I win my SSDI appeal, I feel like my quality of life would improve because just the added stress is effecting my health a lot.

Everything will work out, that I know....but it's just difficult sometimes to hold on and stay optimistic with all thn unknowns post transplant.

 Save a Life...Be Someone's Hero...   
 Be An Organ Donor!

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen