In Idaho a nasty cough was going around and I was trying ever so diligently to avoid picking it up. I thought I was out of the clear when I began to notice my energy level drop tremendously and within a couple days I developed a cough. I called my local pulmonologist and was quickly seen. However, I've now learned a very hard lesson on who to trust with my care. Everything he did (and didn't) do for me lead me down deeper into the rabbit hole of my troubles. He didn't order PFT's despite me asking, he didn't order a CT scan until it was too late. He NEVER consulted my transplant team. He put me in an antibiotic that did more harm than good and he laughed at the idea of needing a bronch. After just 5 days I took my life into my own hands and contacted my transplant Doctor directly.
Within one day we were on an airplane from Idaho to PITT. I was admitted through the ER where they were expecting my arrival with orders from Dr.Pilewski (transplant expert) 💕
They began treating me for an obvious nasty infection that was brewing out of control. I cultured B.cepacia along with psudomonious
They took me in for a bronch (first one in 7 years)!! Bronchs are high risk with culturing b.cepacia and they only do them under circumstances of medical nessesity. They found what they suspect is rejection however it is nothing like what they've seen before. I have been in the UPMC Hospital for over a week and will continue to stay close to my center during the duration of my treatment.
My husband has been with me and not working, we will be staying at the local family house where I can continue to heal. With all the travel, medical expenses and expense of being away from home we need some help.
If you can help please do. If you can share my story & gofundme please do.
I'm just 5 months away from my 10 year transplantiversary and this little bump in the road is not going to get me down. Prayers are answered in Gods way and despite the fear, stress, expenses and other emotions I have I am still humbled and grateful for everything my life is and my trials that make me stronger.
I will post updates and pictures.
4 comments:
I was hurt and heart broken when my husband left me with two kids for one year, All effort to bring him back failed I thought I'm not going to see him again not until I met a lady called Jesse who told me about a spell caster called Dr.Oku, She gave me his email address and mobile number and I contacted him and he assured me that within 28 hours my husband will come back to me, In no less than 28hours my husband came back started begging for forgiveness saying it is the devils work, so I'm still surprise till now about this miracle,i couldn't conceive but as soon as the spell was cast,i became pregnant and gave birth to my third child(Michelle) if you need any assistance from him you can contact him via:email; okutemple@gmail.com , you can also call him or add him on Whats-app: +2347053113465 and tell him I referred you to him
I was hurt and heart broken when my husband left me with two kids for one year, All effort to bring him back failed I thought I'm not going to see him again not until I met a lady called Jesse who told me about a spell caster called Dr.Oku, She gave me his email address and mobile number and I contacted him and he assured me that within 28 hours my husband will come back to me, In no less than 28hours my husband came back started begging for forgiveness saying it is the devils work, so I'm still surprise till now about this miracle,i couldn't conceive but as soon as the spell was cast,i became pregnant and gave birth to my third child(Michelle) if you need any assistance from him you can contact him via:email; okutemple@gmail.com , you can also call him or add him on Whats-app: +2347053113465 and tell him I referred you to him
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