I have heard thy prayer, I have seen thy tears, behold I will heal thee.
2Kings 20:5
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Thursday, June 15, 2017

Rejection

What more can a organ recipient ask for than 9.5 years of healthy rejection free life. The reality is rejection is real and even as far out and "safe" I knew deep down it too would happen to me to just didn't know when. I guess no one can really be prepared for rejection and what it does to our bodies. I certainly was not ready. Within 5-7 days of having some chest congestion I began to realize this was not a normal cold/cough. I had seen my local pulmonologist after just a couple days of getting my cough. He was arrogant and ignorant and his care plan put me in grave danger. I listened to my body and went over his head to my transplant team. My fev1 had dropped 35% and my entire body felt off. My husband got plane tickets that day and we flew across the country to my transplant center in Pittsburgh. I barely made the trip
And was admitted through the ER. Immediately they put me on IV antibiotics as well as inhaled.

I was shocked at how fast my body declined, I felt like I was dying. All the fears and emotions from
Before my transplant resurfaced a it was so incredibly hard to not break down..to stay strong and push foward. 

We watched Wonder Woman before heading back to Pittsburgh. I'm far from
Wonder Woman but I fight my battles head on and take on challenges placed before me with courage & hope. 

We've raised some money to help with all our travel & expenses at this time. The love & generosity people have shown to me is just amazing. I am such a blessed person to have my life filled with beautiful souls who wrap their love around me and give me strength to endure. 

Officially I'm in acute mild rejection. It's treatable and I will start the solumedral tomorrow -Sunday. I have my best friend and incredible husband by my side. I know God loves me & hears my prayers...this too shall pass. 

"I have heard thy prayer, I have seen thy tears: behold, I will heal thee" 2 Kings 20:5
 
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5 comments:

Unknown said...

I just love your amazing strength, you are truly a super hero!
Bless your hearts!

June 16, 2017 at 12:25 AM
Reagan Gardner said...

Be so strong Jamie. I know you are and just typing that seams weird. But everyone get drawn down at times and it helps to have confirmation. You are the magic, the ever powerful Unicorn. What happens will happen, but you tell your damn body and mind that people need you, so woman up lungs, let's agree to agree!!!! Hayleymaeley@yahoo!!

June 16, 2017 at 1:05 AM
Anonymous said...

Hi Jamie, I followed you forever through blogger before I moved to Tumblr. I came back to blogger and read your recent posts. I am so sorry to hear you are in rejection but you'll get through it! Hang in there!

I went through a rejection that started in 2015. I am out of it now.

Terri (Team Starla)

June 19, 2017 at 9:36 PM
Alice said...

So sorry to hear about all of this! I must have been asleep or something as I'm only reading this now! Thinking of you!

July 12, 2017 at 1:31 PM
Tanvi said...

Hi Jamie,

My name is Anuj Agarwal. I'm Founder of Feedspot.

I would like to personally congratulate you as your blog JAMIEBUG CF CEPACIA LUNG TRANSPLANT has been selected by our panelist as one of the Top 75 Cystic Fibrosis Blogs on the web.

https://blog.feedspot.com/cystic_fibrosis_blogs/

I personally give you a high-five and want to thank you for your contribution to this world. This is the most comprehensive list of Top 75 Cystic Fibrosis Blogs on the internet and I’m honored to have you as part of this!

Also, you have the honor of displaying the badge on your blog.

Best,
Anuj

November 22, 2017 at 4:26 AM

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Where to start to learn about my transplant!

Thank You for taking the time to read my blog. I am hoping that through this blog and my experiences that I can bring hope, faith and strength to all that may be living with Cystic Fibrosis, CF with Cepacia and Lung Transplant recipients. Information and blog entrees start Nov. 07. My Double Lung Transplant was on Dec. 10th 2007. Please feel free to read about my experience and ask me any questions! My email address is jamiebug77@gmail.com

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My Testimony

It's hard to put into words how I feel toward my Heavenly Father and the Savior. I have so many reasons to be thankful for what I have gone through & endured. Because of my trials in life I have gained a strong testimony of Faith. I have always had Faith in the Lord and in Prayer. As I faced the decision to get a double lung transplant I had to rely on faith to make the choice.....By listening to the spirit, I was guided to Pittsburgh where my life was saved. I believe prayers are answered. I have always tried to follow the philosophy of this: If I do what the Lord expects of me, he will give me what I want & need. That has always worked for me. I Believe in MIRACLES..........My life on this earth is a miracle- I prayed on my knees for years to be healed from my lung disease. I knew that through a priesthood blessing (if it was God's will) I could be healed. So many times I thought he would heal me instantly...my faith was tested as I continued to get sick and no cure was in my future. I turned to prayer....I talked to my Heavenly Father, I cried to him and he heard me and he healed me by guiding me to Pittsburgh and guiding the surgeons hands. I learned humility, and thankfulness. I realized that we need others to lean on and we are supposed to strengthen each others testimonies. I learned that the hardest things we'll do are usually the greatest blessings in our life. I was able to experience a lot of things during surgery and I know I had comforting angels in my ICU room. THe Lord knows each of us by name and he will never leave our side. We need to remember to stay close to him and have Faith that he is watching over us. I know this for a fact! I know that following the gospel will bring us true happiness- the world will tell us otherwise, but I know I am truely happy & living the gospel has brought me that. Amen