I had an appointment to get PFT's, my scores ROCK! My FVC was 111% and my FEV1 was 93% I can't complain about those numbers!!! Also while I was there I was asked to be a panel speaker at the Phoenix Children's Hospital CF Family Education Day! I was asked to speak about lung transplants. My experience and what life was like for me pre and post transplant!!! I am happy to do it for them since they so generously gave me plane tickets to Pittsburgh when I had to go back in May! They are a great center and I am really excited to share my transplant experience & hopefully help other Cystics who may be facing making that decision! I will speak on October 9th. . .so I will let ya'll know how it goes!
Save a Life* Be Someone's Hero* Be an Organ Donor
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3 years ago
4 comments:
AWESOME, AWESOME, AWESOME NUMBERS!!!!
DITTO WHAT DENISE SAID!! AWESOME NUMBERS!!!! AND CONGRATS ON THE SPEAKING ENGAGEMENT!
Hey Jamie,
My husband will be at that panel discussion. Hoping he can meet you. Looking forward to hearing about your experience as we are facing that decision right now.
Awesome opportunity! Great job creating awareness!
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